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Inclusion article

Are people with autism benefiting from disability reforms and supports to the same extent as people with other developmental disabilities? HSRI staff, along with partner Ari Ne’eman, examined the NCI Adult Consumer Survey data to find out. They discovered that, compared with respondents without an ASD diagnosis, respondents with ASD with were less likely to have paid jobs in the community, less likely to have had input into major life decisions, and less likely to be included in their communities. Check out their newly released article in the journal Inclusion, featuring additional findings and some suggestions for future research and policy. Congratulations to the authors – HSRI’s Dorothy Hiersteiner, Valerie Bradley, Julie Bershadsky, and Alixe Bonardi, and Ari Ne’eman of the Autistic Self Advocacy Network!... Read More

NCI Annual Report 2007-2008

This report provides detailed state system performance data on individual outcomes, including employment, community participation, choice and decision making; health, welfare and rights covering personal safety, self advocacy and use of medications; family outcomes, addressing information and planning, choice and control and access to support; and other dimensions such as staff stability and competency, and system performance. Intended to be used in combination with other quality measures such as critical incident reporting, risk assessment and provider monitoring, the NCI indicators are standardized and risk adjusted to permit state to state comparisons and performance benchmarking against national norms. Many states include NCI data as a core component of their CMS mandated waiver program quality management strategy. Currently over thirty state developmental disabilities agencies gather NCI data on a regular basis and the program continues to grow as new states join each year.... Read More

The Riot! featured in Apostrophe Magazine

Apostrophe, a magazine for people with disabilities, recently reported on The Riot!‘s new website in an article titled: Self-advocacy newsletter launches new website. The new website features improved acessibility controls, toolkits, products, games, and showcases work from Spotlight Studios, a gallery dedicated to displaying work from artists with intellectual and developmental disabilities. “Together, we take a tough and honest look at sensitive issues like closing institutions, silly rules that keep people down, disability pride and intimate relationships. We tell it like it is - Riot style, with a purpose and a sense of humor.” - HSRI Policy Associate Jaime Daignault Apostrophe is a quarterly magazine involved in the lives of people affected by intellectual disabilities, providing jobs, opportunities, resources and support. The article may be accessed on page 52 in the article viewer in the following link (requires Flash):http://apostrophe.journalgraphicsdigital.com/current/... Read More

Lilia Teninty to Join the Human Services Research Institute

Brings key experiences and knowledge to HSRI’s Developmental Disabilities Policy Team We are pleased to announce that Lilia Teninty, M.PA., has joined the Human Services Research Institute as a Senior Policy Specialist. Ms. Teninty will focus on a variety of HSRI priorities, including system re-design, resource allocation, self-directed services, family support, and quality improvement. As always, in this work she will team with others at HSRI to generate policy solutions to promote community integration and self-direction. Please join us in welcoming Ms. Teninty to HSRI. Her strong management experiences as a state policy maker, coupled with her knowledge of the field and her commitment to community centered policy solutions assure that she will make significant contributions to our work and the field overall. Beginning April 18, 2011 Ms Teninty may be reached by email at: LTeninty@hsri.org... Read More

Reinventing Quality Conference: August 8-10, 2012

HSRI, along with our colleagues at the University of Minnesota, National Association of State Directors of Developmental Disabilities and the University of Delaware have, for many years, sponsored the Reinventing Quality Conference. This year’s conference will be held in Baltimore, MD from August 8-10, 2012. It will feature a range of exciting presentations, and will provide information, new ideas and active discussions about person-centered planning, employment innovations, self-advocacy and more for people with intellectual and developmental disabilities. Both the 2008 and 2010 Reinventing Quality conferences attracted over 700 disability professionals, people with disabilities, family members, advocates, and state and federal officials. The goal of the Reinventing Quality Conference is to provide information, new ideas and active discussion about the point of view of people with disabilities and their families—and the systems and supports needed to improve the quality of life and citizenship for people with disabilities. Please go to www.reinventingquality.org for more information about the program and to register for the conference.... Read More

Reminder: Reinventing Quality Conference: August 8-10, 2012

HSRI, along with our colleagues at the University of Minnesota, National Association of State Directors of Developmental Disabilities and the University of Delaware have, for many years, sponsored the Reinventing Quality Conference. This year’s conference will be held in Baltimore, MD from August 8-10, 2012. It will feature a range of exciting presentations, and will provide information, new ideas and active discussions about person-centered planning, employment innovations, self-advocacy and more for people with intellectual and developmental disabilities. Both the 2008 and 2010 Reinventing Quality conferences attracted over 700 disability professionals, people with disabilities, family members, advocates, and state and federal officials. The goal of the Reinventing Quality Conference is to provide information, new ideas and active discussion about the point of view of people with disabilities and their families —and the systems and supports needed to improve the quality of life and citizenship for people with disabilities. Please go to www.reinventingquality.org for more information about the program and to register for the conference.... Read More

Finn Gardiner

Finn Gardiner is a Master of Public Policy student at the Heller School for Social Policy and Management at Brandeis University. He holds a bachelor’s degree in sociology from Tufts University. He currently works with the Lurie Institute for Disability Policy at Brandeis University and the Autistic Self Advocacy Network. Throughout his work, Finn combines disability advocacy, policy analysis and research, and written and visual communications through policy briefs, original reports and white papers, and contributions to research projects. His research and advocacy interests include education and employment for autistic adults, comparative disability policy, inclusive technology, LGBTQ cultural competency, and policy that takes into account the intersections between disability, race, LGBTQ identities, class, and other experiences. Finn recently worked with a team of researchers at the University of Massachusetts Medical School and HSRI on a project that gauged attitudes about the creation of an autism database in Massachusetts in order to create policy recommendations for the state. Finn is a seasoned public speaker who has appeared at a variety of venues, including the Obama White House’s 2016 LGBTQ Disability Day panel, the National Council on Disability’s panel on inclusive technology for people with disabilities, the United Nations’ 2016 Disability and Ageing Symposium, and the 2015 and 2017 American Association on Intellectual and Developmental Disabilities national conferences. Finn’s writing has been published in NOS Magazine, The Thinking Person’s Guide to Autism, and the anthology All the Weight of our Dreams. ... Read More

HSRI Presentations at IASSID World Congress and AAIDD Annual Meeting

HSRI staff will be presenting several papers at the upcoming AAIDD Annual Meeting in Charlotte, North Carolina in June and the IASSID World Congress in Halifax, Nova Scotia in July. Presentation topics at the AAIDD meeting will focus on NCI results, including community employment, family outcomes, and data related to the use of psychotropic medications, but also on HSRI’s work pertaining to building individualized budgets based on a measure of individual support needs. Likewise in Halifax, the NCI program will be the focus of a plenary session entitled “National Core Indicators: Outcomes and Services for Adults with Intellectual Disabilities,” presented jointly by Roger Stancliffe from the University of Sydney and Sarah Taub from HSRI. HSRI and our partners at NASDDDS are excited about the opportunity to share NCI findings with an international network of colleagues. In addition, HSRI staff will also be presenting on work related to self-advocacy, systems change and establishing individualized budgets. More information about the conferences is available here:http://www.aaidd.org/content_6546.cfmhttps://iassid.org/conference/index.php/HPC/2012IWC Plenary information is available here:https://iassid.org/conference/index.php/HPC/index/pages/view/Plenary... Read More

Cathy Ficker Terrill

Cathy Ficker Terrill’s career has included working in government, nonprofit organizations, university teaching, advocacy and supporting and mentoring self-advocates. Before joining CQL as president and CEO on January 1, 2013, Cathy was president and CEO of The Institute on Public Policy for People with Disabilities, an Illinois-based organization dedicated to providing leadership and technical assistance to drive public policy and promote best practices for individuals with disabilities. Cathy previously served as president and CEO of the Ray Graham Association, where she utilized the CQL Personal Outcome Measures to reinvent a provider agency to become a more community-based, person-centered organization. Ray Graham Association was the first organization to be accredited with both the Quality Measures 2005 and the latest standards, Person-centered Excellence Accreditation. Cathy worked as the vice-president of the Brain Injury Association (BIA). She is also a past president of the American Association on Intellectual and Developmental Disabilities (AAIDD) as well as a former president of Illinois TASH. Cathy authored a manual on Consent Issues for Self-Advocates and Direct Care Staff, and was a two-term Presidential Appointee to the President’s Committee for People with Intellectual Disabilities (PCPID). For the past 20 years, she has volunteered internationally, helping to create services for people with disabilities in Kosovo, Poland, Russia, Korea, Cyprus, Lithuania, Japan, Saudi Arabia, and China. ... Read More

Jami Petner-Arrey

Jami is a policy associate whose work is driven by a passion for promoting the autonomy of people with intellectual and developmental disabilities. This passion is expressed through work to ensure that all individuals with IDD can access the diverse supports they need to thrive. Jami is particularly devoted to working with public agency staff to explore changes needed in IDD systems that better promote access to and use of supports, and to develop plans to implement needed changes. Jami is also highly skilled in helping governments to manage limited resources through the implementation of a supports budget framework that fosters equity and promotes self-direction of services. In addition to supporting clients in systems change and supports budgets, Jami also has deep experience in working with self-advocates and regularly contributes to the efforts of The Riot!, a platform for self-advocates to talk about the issues that are most important to them. Prior to joining HSRI, Jami held a post-doctoral internship with Queens University: Multidimensional Assessment of Providers and Systems (MAPS) to assess and develop quality indicators for IDD support services. Jami was a special educator, including a head teacher, for 11 years and a service coordinator and direct support provider for 4 years. Jami is also a Leadership Education in Neurodevelopmental and Related Disabilities (LEND) fellow, has interned with Disability Rights New Mexico, and has participated in ethics training and sat on human rights committees. When not at work, Jami enjoys running, being in the wilderness, crafting, compulsively reading, and spending time with her favorite people in the world (Asa-husband, Ario-son, and Juni-daughter)! Education Doctorate in special education: social justice, advocacy, and public policy from the University of New Mexico Master's degree in special education: severe disabilities from the University of New Mexico Bachelor's degree in special education: language arts from Eastern New Mexico University... Read More

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