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Self Advocacy

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Community Support Skill Standards:  Tools for Managing Change and Achieving Outcomes

The Community Support Skill Standards (CSSS) identify the master level practice standards for direct service workers in progressive, community-based human service work environments. Developed and validated by a national coalition of key stakeholders, the standards represent the core skill and knowledge set applicable to frontline workers in a wide variety of human service program settings regardless of the specific job title or population served. Standards and performance indicators represent the result of a comprehensive, national occupational analysis and are organized in twelve functional domains of direct support practice including: Participant Empowerment; Communication; Assessment; Community and Service Networking; Facilitation of Services; Community Living Skills and Support; Education, Training and Self Development; Advocacy, Vocational, Educational and Career Support, Crisis Intervention, Organizational Participation, and Documentation. For a copy of the Community Support Skill Standards, please contact Sebrina Johniken at sjohniken@hsri.org.... Read More

Reinventing Quality 2016

Registration is now open for the Reinventing Quality 2016 Conference, which takes place in Baltimore July 31 - August 2! Topics for the 2016 conference include:... Read More

New self-determination resource now available from the Riot!

The Riot is excited to announce that Space Race is now available for purchase at www.theriotrocks.org/products/space-race. The Space Race game is a new resource for developmental disability service providers, transition specialists, self-advocates, and others involved in person-centered planning processes or in teaching people how to use self-directed supports. ... Read More

Nicole LeBlanc

Nicole LeBlanc is the coordinator of the Person-Centered Advisory and Leadership Group (PAL-Group) for the National Center on Advancing Person-Centered Practices and Systems (NCAPPS). She'll help to ensure that the PAL-Group informs and supports the direction of the efforts of NCAPPS and will help with the development of cognitively accessible project materials and resources that reflect the experiences of people with disabilities. Nicole has a keen ability and interest in public policy and excels at communicating the needs of people with developmental disabilities to public officials. She worked for 8+ years at Green Mountain Self-Advocates in Montpelier, Vermont as advocacy director, supporting her peers with disabilities to feel comfortable talking to elected officials about their needs. While at GMSA, Nicole served as the project assistant for the Inclusive Healthcare Partnership project, researching tools that would assist people with I/DD in getting their healthcare needs met. She also helped prepare the self-advocate team members for monthly meetings on topics such as transition from pediatric to adult healthcare providers, health and wellness, and healthcare policy. Nicole is a natural leader chosen by her peers due to her unwavering commitment to speaking the truth to power. She has presented keynotes on the dignity of risk at statewide self-advocacy conferences in Alabama, Missouri and Rhode Island. Since 2011, Nicole has consulted for Self-Advocates Becoming Empowered and the Autistic Self-Advocacy Network—developing self-advocacy tools and curriculums, presenting webinars and video blogs on the topics of healthcare, what is autism, presuming competence, self-managed services, voter access and employment of people with disabilities. Nicole moved to the DC Suburb of Silver Spring, Maryland to begin the Paul Marchand Public Policy internship at AUCD that went from 2016-2017. Nicole is one who is not willing to shy away from taking on big challenges and new adventures. In 2017 Nicole traveled to Iceland & Ireland as part of the AAIDD delegation. Since November 2017, Nicole has been the advocacy specialist for the Southern Region of Maryland where she assists self-advocates in dealing with the challenges of the service system. From February 2018 to September 2018, Nicole served as the Dr Ruth Sullivan policy fellow. From March 2018 to March 2019, Nicole was the SARTAC-Self Advocacy Resource and Technical Assistance Center fellow for NDRN where she created a booklet on advocating for policies that promote Competitive Integrated Employment ('Real Jobs for Real Pay').... Read More

Handling Emergencies: A Guide to Personal Safety and Emergency Management

This guide for individuals with disabilities helps people who live in their own homes to prevent emergencies from occurring and to plan in case an emergency does occur. Prepared by HSRI for the State of Oregon, Services to People with Disabilities, the guide addresses six risk areas — medications, medical conditions, abuse & neglect, back-up caregiving, home safety and natural disasters — and includes an emergency information sheet and other quick-reference lists.... Read More

Reinventing Quality Conference: August 8-10, 2010

HSRI, along with our colleagues at the University of Minnesota, National Association of State Directors of Developmental Disabilities and the University of Delaware have, for many years, sponsored the Reinventing Quality Conference. This year’s conference will be held in Baltimore, MD from August 8-10, 2010. It will feature a range of exciting presentations, and will provide information, new ideas and active discussions about person-centered planning, employment innovations, self-advocacy and more for people with intellectual and developmental disabilities. Please go to www.reinventingquality.org for more information about the program and to register for the conference.... Read More

The Riot! Launches New Website

Rowdy Riot gets a redo! The Riot! has changed a lot over the past six years! It has grown from an eight-page newsletter with a few hundred subscribers to a popular publication with a huge following and a national and international reputation! Today, the Riot! is much more than a newsletter – it’s an enterprise. It grew from an unruly tendril to a rowdy vine with no place to go. We had to give it more room and we had to do something fast! So we gave The Riot! a new look and a new website where you can talk it up on the blog with other readers and see products and services that promote self-advocacy and self-determination. You can also visit Spotlight Studios, an online art gallery that celebrates artists with intellectual and developmental disabilities. Who knew that if you put it in the sun, it would grow?! Check out the new riot website: www.theriotrocks.org and have yourselves a regular Riot!... Read More

Jami Petner-Arrey

We are pleased to announce that Jami Petner-Arrey, Ph.D., will join HSRI in the position of policy associate on April 6. Jami will work within our intellectual and developmental disabilities (I/DD) studies team in our Tualatin, Oregon office. She’ll participate in and manage projects related to the design of support systems for people with I/DD. Popular topic areas include self-advocacy, means for supporting families, strategic planning, and systems redesign centered on establishing individualized supports budgets for service recipients. These efforts will primarily involve quantitative or qualitative data analysis, policy analysis, and partnerships with state human services agencies, local organizations, and others. Jami completed her doctoral studies in special education at the University of New Mexico with supporting studies centered on social justice, advocacy, and public policy. Previously, she served as a Homebound Head Teacher in the Albuquerque Public Schools and as university instructor. She also completed post-doctoral studies in Ontario, Canada to explore employment practices and person?directed planning for people with I/DD.... Read More

HSRI Presentations from AAIDD Annual Meeting 2015

HSRI President Val Bradley and many members of our staff recently attended and presented at the AAIDD Annual Meeting in Louisville, Kentucky. The conference sessions and plenaries highlighted exciting innovations in research, practice, and policy, and HSRI attendees returned feeling motivated and energized about progress in the field. Here we provide a number of the presentations they gave, covering such topics as staff stability, the new HCBS requirements - tools for tracking compliance and for self-advocates, and quality of life data and trends.... Read More

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