Skip to content
  • About
    • Who We Are
    • How We Work
    • Our Commitments
    • News & Perspectives
  • Cross-System Approach
    • Specialties
      • Aging & Disabilities
      • Behavioral Health
      • Child, Youth & Family
      • Housing & Homelessness
      • Intellectual & Developmental Disabilities
      • Population Health
    • Solutions
      • All-Payer Claims Database
      • Person-Centered Practices
      • National Core Indicators
      • Systems Redesign
      • Verity Analytics
    • Services
  • Projects & Impact
  • Team of Experts
  • Contact Us
  • About
    • Who We Are
    • How We Work
    • Our Commitments
    • News & Perspectives
  • Cross-System Approach
    • Specialties
      • Aging & Disabilities
      • Behavioral Health
      • Child, Youth & Family
      • Housing & Homelessness
      • Intellectual & Developmental Disabilities
      • Population Health
    • Solutions
      • All-Payer Claims Database
      • Person-Centered Practices
      • National Core Indicators
      • Systems Redesign
      • Verity Analytics
    • Services
  • Projects & Impact
  • Team of Experts
  • Contact Us
  • Home
  • /
  • 2026 I/DD Counts Data Summit

2026 I/DD Counts Data Summit

Access I/DD Counts Data Summit materials on this site.

Download the Agenda for the I/DD Counts Data Summit

  • How to Get to the Summit
  • Data Summit Words to Know: A Glossary
  • Data Summit Notebook
  • Data Summit Notebook LARGE PRINT
  • Biographies of Data Summit Moderators and Speakers

  • Panel 1 Slides


Supplemental Materials

  • I/DD Counts Summit Proceedings, November 17-18, 2022
  • Different Definitions of Developmental Disability and Implications for Outcomes (Ne’eman & Clark)
  • Functional Limitations Reported Among U.S. Adults With Intellectual Disability Participating in Special Olympics: A Comparative Analysis to the General Population (Dixon-Ibarra et al.)
  • Special Olympics’ Contributions to IDD Survey Data and Measurement (Dixon-Ibarra)

  • Panel 2 Slides

Supplemental Materials

  • OHSU: Closing the Gap: Explore the Data and Find the Full Story

  • Panel 3 Slides

  • Panel 4 Slides


Supplemental Materials

  • Panel 4 Links and Resources
  • How Do We Measure ‘Who’s in Control’? (SARTAC, ASAN, CLPC)

  • Panel 5 Slides


Supplemental Materials

  • NIH: Data Systems and Programs to Improve IDD Research (Parisi)
  • IEC: Making IDD Visible (Pham)
  • PCORnet: Building Data Capacity for Comparative Clinical Effectiveness Research and Other Analyses on IDD (Koscielniak)
  • PCORnet Population Insights Report
  • NIH: Strategic Plan for Disability Health Research

2336 Massachusetts Avenue
Cambridge, MA 02140

617.876.0426

Facebook LinkedIn Youtube
Careers Contact News & Perspectives Privacy Policy

© 2026 Human Services Research Institute

Sign up for our Newsletter

Newsletter Signup