2026 I/DD Counts Data Summit

• How to Get to the Summit
• Data Summit Words to Know: A Glossary
• Data Summit Notebook
• Data Summit Notebook LARGE PRINT
• Biographies of Data Summit Moderators and Speakers

• Panel 1 Slides

Supplemental Materials

• I/DD Counts Summit Proceedings, November 17-18, 2022
• Different Definitions of Developmental Disability and Implications for Outcomes (Ne’eman & Clark)
• Functional Limitations Reported Among U.S. Adults With Intellectual Disability Participating in Special Olympics: A Comparative Analysis to the General Population (Dixon-Ibarra et al.)
• Special Olympics’ Contributions to IDD Survey Data and Measurement (Dixon-Ibarra)

• Panel 2 Slides

Supplemental Materials

• OHSU: Closing the Gap: Explore the Data and Find the Full Story

• Panel 3 Slides

• Panel 4 Slides

Supplemental Materials

• Panel 4 Links and Resources
• How Do We Measure ‘Who’s in Control’? (SARTAC, ASAN, CLPC)

• Panel 5 Slides

Supplemental Materials

• NIH: Data Systems and Programs to Improve IDD Research (Parisi)
• IEC: Making IDD Visible (Pham)
• PCORnet: Building Data Capacity for Comparative Clinical Effectiveness Research and Other Analyses on IDD (Koscielniak)
• PCORnet Population Insights Report
• NIH: Strategic Plan for Disability Health Research