Working with NASDDDS, individual state agencies, and self-advocates, we’ve been measuring the performance of services and supports for people with intellectual and developmental disabilities—both within and across states. This groundbreaking data collection initiative is improving the quality of service delivery nationwide, and has produced the world’s largest dataset on outcomes for people with IDD.
National Core Indicators (NCI) supports state efforts to strengthen long-term care policy, inform quality assurance activities, and compare performance with national norms. Staff also publish data briefs on specific areas of interest, and the results of analyses of the multi-state dataset have been published in academic research journals and presented at conferences.
Through in-person and mail-in surveys of service users and their families, NCI helps states measure crucial elements of person-centered planning, outcomes, and satisfaction in domains such as:
Each year, NCI produces national and state-specific reports detailing the data aggregated at the state level. The reports are available on the NCI website at www.nationalcoreindicators.org. NCI also provides publicly available tools to help states understand and report on their data, including an online Chart Generator.
By helping to develop measures, data collection instruments, and protocols—and by aggregating, cleaning, analyzing and reporting on the data—we help give states a broad view of how their publicly funded services are impacting the quality of life and outcomes of service recipients. States use the data to track their own performance over time, to compare results across states, and to establish national benchmarks.
Dan Lusk
Former Director for the Division of Developmental Disabilities (DDD), South Dakota
State DD agency directors and managers use NCI data to:
NASDDDS | National Association of State Directors of Development Disabilities Services