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  • HSRI Newsletter - March 2014

    03/2014

    The HSRI Newsletter (March 2014) was released this week. Topics include:

    • Reinventing Quality 2014
    • HSRI Child and Family Services Team Releases Final Report for the Ohio Soar Project
    • A Symposium for Madeleine Kimmich: Celebrating 26 Years of Service at HSRI
    • Update on National Core Indicators – Aging & Disability Services
    • and more!

    You can find an online copy of the newsletter here: http://www.hsri.org/newsletter/20140311/

    And you can sign up to receieve future newsletters here: http://eepurl.com/eCefo

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  • HSRI National Core Indicators Team Participates in Webinar on Reducing Medication Use in Adults with ID/DD

    03/2014

    On February 18, Val Bradley and Dorothy Hiersteiner participated in a webinar titled “Reducing Medication Use in Adults with ID/DD,” organized by the American Network of Community Options and Resources (ANCOR). Val and Dorothy presented NCI findings on rates of psychotropic drug use among the NCI Adult Consumer Survey population and discussed initiatives undertaken by states to manage over-medication. Other webinar presenters demonstrated the findings of state-specific studies into psychotropic drug use and discussed the measures their states have taken to reduce over-medication in adults with ID/DD. The webinar brought attention to an important issue, and it was well-attended and well-received.

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  • Reinventing Quality 2014 Conference

    03/2014

    Registration is now open for the Reinventing Quality 2014 Conference: Ensuring Quality in Rapidly Changing Times, to be held in Baltimore, MD, August 3-5, 2014!

    The goal of the Reinventing Quality Conference is to provide information, new ideas and active discussion about the point of view of people with disabilities and their families, and supports that improve opportunities for citizenship and the quality of life for all people with disabilities.

    Reinventing Quality is a biennial conference showcasing best-practices in supports and services for people with disabilities. Disability professionals, people with disabilities, family members, advocates, and state and federal officials find this conference to be their “must attend” event of the year.

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  • APHA honors HSRI Senior Vice President Steve Leff with Carl Taube Award

    12/2013

    Dr. Leff received the Carl Taube Award from the American Public Health Association. The award recognizes scholars who have made important contributions to the field of public mental health. Dr. Leff presented the Carl Taube Award Lecture on Nov. 4 at the annual meeting of the APHA.

    “The original planning for the deinstitutionalization of persons with serious mental illness (that is persons diagnosed with schizophrenia, bipolar disorder, major depression and other disorders that can result in significant functional impairments) underestimated the need for community-based services and service coordination. This was because the initial planning for deinstitutionalization was motivated by unproven theory and the vision of advocates, but not evidence. Are we about to make the same mistakes when it comes to planning for integrated care for persons with serious mental illness? Research on types and outcomes of integrated care for persons with serious mental illness is in short supply. Yet successes using integrated care for persons with depression and aspects of the Affordable Care Act have resulted in a movement to use integrated care for persons with serious mental illness. This presentation will review the available evidence on integrated care for persons with serious mental illness. Further, given the shortage of research, it will illustrate how a simulation model developed by the presenter, in combination with available evidence, can be used to provide a theoretical basis for and inform the planning of integrated systems of care for persons with serious mental illness. Finally, it will discuss the theoretical questions such as the relationship of simulation outcomes to recovery and data needs stemming from this simulation model. The presentation will include a demonstration of the simulation model and a description of where resources for planning services for persons with serious mental illness can be found.”

    Visit Planning by the Numbers: A clinically orientated computer simulation for mental health system planning.

    Download Dr. Leff's presentation.

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  • New NCI Data Brief on Race and Ethnicity and Preventive Healthcare

    12/2013

    NCI is proud to announce the release of a new data brief entitled "What do NCI data tell us about the racial and ethnic disparities in healthcare utilization experienced by adults with intellectual and developmental disabilities?" The data brief explores significant differences among racial and ethnic groups in demographics such as age, mobility level, level of disability and residence type. The data brief goes on to examine significant differences in preventive healthcare use.

    The data brief can be found at http://www.nationalcoreindicators.org/resources/data-briefs/

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  • NCI 2011-2012 Annual Report Released

    11/2013

    National Core Indicators (NCI) is proud to announce the release of the 2011-12 Annual Summary Report. The Annual Report highlights selected findings from the 2011-12 data cycle. Please take a look at this valuable and informative resource.  

    The 2011-2012 Annual Report accessed here or under "Reports" under the "Resources" tab at www.nationalcoreindicators.org.

     

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  • HSRI President Valerie Bradley will Receive the 2013 Pool of Bethesda Award

    10/2013

    The Pool of Bethesda Award will be presented on behalf of the Board of Directors of Bethesda Lutheran Communities. This award is one of Bethesda’s highest honors and it recognizes people who have made outstanding contributions of service and leadership in the field of intellectual and developmental disabilities throughout the United States.

    Valerie will accept the award at the Bethesda 2013 Annual Banquet, in Milwaukee, Wisconsin, on Saturday, November 16th.

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  • HSRI Hires Three Individuals to Join the Developmental Disabilities Policy Team

    09/2013

    HSRI is pleased to announce the hiring of three individuals to join the Developmental Disabilities Policy Team at its Oregon office.  These individuals include:

    Erica Hendricks, J.D. is a Policy Associate at HSRI and earned her law degree at the University of California, Hastings College of the Law.  Prior to joining HSRI she worked in the Oregon State Legislature as a legislative aide, as a law clerk for a special education law firm in California and at HOPE Services as a case manager for people in their supported living program.  At HSRI, she is currently working on projects pertaining to strategic planning, family support practices, and realigning service systems to increase their efficiency while promoting person-centered approaches. 

    Faythe Aiken, B.A. is a Research Assistant at HSRI and has a bachelor’s degree in psychology with honors from Holy Cross College.  Prior to her work at HSRI, she worked on a longitudinal research study at the University of Notre Dame and in community advocacy for individuals with developmental disabilities at L’Arche Belfast.  She presently works on several HSRI projects related to data collection and analysis.  These include projects to track residential service trends in the United States, strategic planning and others to realign service systems to increase their efficiency while promoting person-centered approaches.

    Risa Rojas, B.A. is a Policy Assistant at HSRI and a graduate of Portland State University in Applied Linguistics with a minor in Spanish. She is currently working on projects pertaining to strategic planning and realigning service systems to increase their efficiency while promoting person-centered approaches.  In particular she focuses on strategies for communicating with stakeholders, including developing and editing materials, gathering input from stakeholders and otherwise keeping stakeholders informed of project activities. 

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  • For Sarah: Val Bradley Eulogizes Sarah Taub

    08/2013

    The following eulogy was given by HSRI President Valerie Bradley at services for Sarah Taub.

    For Sarah

    By Val Bradley

    Sarah Taub

    It is an extraordinary privilege to speak about my dear friend and colleague, Sarah. For 17 years, she has been a steady and powerful presence in my life and has put the imprint of her grace and intelligence on every aspect of the organization that was her professional home, the Human Services Research Institute. There are those that say that everything of value that we will know in this life comes from our relationships with those around us – if that is so, Sarah gave me and those who have worked with her at HSRI value beyond price.

    While I am proud to have been her mentor, the truth is that she tutored me as well. Among my many shortcomings is a tendency to be impulsive. When I moved too rapidly to a conclusion or a course of action, Sarah was there to gently suggest that I slow down pointing out the possible perils and consequences. Sarah always thought things through, read and researched before coming to a conclusion, and brought integrity and foresight to all that she did.

    To read the eulogy in its entirity, please click the read more link below...

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  • Sarah Taub 1971 - 2013

    08/2013

    Sarah Taub

    It is with deep regret that HSRI announces the passing of our friend and colleague Sarah Taub. Sarah died Saturday, August 3, 2013 after a 10-month fight with cancer.

    Since she began working at HSRI in 1996, Sarah became a vital and irreplaceable asset to the HSRI team. Sarah most recently served as the Project Director for the National Core Indicators (NCI) project. As part of the Centers for Medicare and Medicaid Services (CMS) National Quality Enterprise team, Sarah provided technical assistance to states in the areas of quality assurance and improvement strategies for Home and Community Based Waiver services. Sarah also served on the board of the Newton Wellesley Weston (NWW) Committee for Community Living, which serves individuals with intellectual and developmental disabilities and their families. She is the author of many peer-reviewed professional publications and received awards for her outstanding research. Sarah’s contributions to the field of human services research are unparalleled.

    Sarah will be greatly missed by HSRI and beyond.

    Services will be on Tuesday, August 6, 2013, at 12:00 noon at the Stanetsky Memorial Chapel, 1668 Beacon St., Brookline, MA. Interment to follow at the Framingham-Natick Jewish Cemetery.

    In lieu of flowers, contributions in her memory may be made to: LMSarcoma Direct Research Foundation, PO Box 52697, Tulsa, Oklahoma 74152. Alternatively, contributions may be made online at: http://www.lmsdr.org/staub.php

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  • The Riot! - Issue 34

    06/2013

    Welcome to our What's in YOUR Cookbook? Issue. Ever heard the old saying, “Too many cooks can spoil the stew”?
    This Riot issue asks all of us this question and many more.

    • Do we have the right ingredients for self-advocacy to be successful?
    • What does it really take to make self-advocacy a powerful movement?
    • Do the advisors run it all?
    • Will the government recognize self-advocates and give us the money we need to teach and support self-advocacy?
    • What skills do we have and what skills do we need to prove we are ready?
    • Can you leave us alone in the kitchen or at least let us choose who we trust to mentor or guide us?


    Download Issue 34

    You can visit The Riot! website here: www.theriotrocks.org

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  • Remembering Reena

    06/2013

    Hello Friends and Colleagues of Reena Wagle,

    It is with immense sadness that we share news that our former HSRI colleague, Reena Wagle, has passed away.  Reena died at home, of natural causes, yet far too young as she was only 50 years old.

    Reena had a laugh that would resonate through our offices and hallways and a spirit to match.  She was committed to supporting people with disabilities to find their voices, and use those voices to inform and better the world.  Reena radiated passion, spirit and mischief in all she did….her work, friendships, dance, photography and cooking.  And she saved a special place in her heart for her family and her greyhounds (also family).

    Regarding her passion for supporting people with disabilities…  please view the following clip:

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  • HSRI is Hiring: Developmental Disabilities Policy Associate

    05/2013

    The Human Services Research Institute (HSRI) seeks a full-time Policy Associate to work within our developmental disabilities studies team in our Tualatin, Oregon office.

    This position offers an exciting opportunity to participate in a variety of projects to advise policy makers regarding the means for managing service systems for people with developmental disabilities. These efforts primarily involve quantitative or qualitative data analysis, policy analysis, and partnerships with state human services agencies, local organizations and others.

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  • HSRI is Hiring: Web Applications Developer

    05/2013

    Human Services Research Institute (HSRI) is seeking an experienced developer for a 3 month full time contract position to assist in the development of various web-based applications. This position will work with our development team and project stakeholders to implement Section 508 compliant front end components which will interact with the back end database. Applications will be built on the Microsoft platform with IIS/ASP.NET and SQL Server. Experience with the Microsoft MVC framework is not necessary but would be considered a plus. Ideal candidates should have 5+ years experience using these technologies and be able to rapidly create solutions in order to meet the aggressive turnaround times required for various upcoming deliverables.

    Please send cover letter and resume to hsrijobs@gmail.com

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  • Evaluation of the Minnesota Preferred Integrated Network (PIN) Program

    04/2013

    The Preferred Integrated Network (PIN) program is currently being implemented in Dakota County, Minnesota by a managed care organization (MCO)/county partnership involving Medica Health Plan, Dakota County, and Medica Behavioral Health. Enrollees in the program are Dakota county adults with SMI and children with SED who are enrolled in Medicaid. A key component of the PIN program model involves a Patient Navigator model that provides case management and coordination of physical and mental health care and social services for enrollees. HSRI, in collaboration with Desert Vista Consulting, is conducting an evaluation of the PIN program which will assess the effectiveness of the program in addressing access, quality, accountability, and cost issues associated with integrated physical and behavioral health for the target population of adults with SMI and children with SED. In addition, the evaluation will identify the components of the Navigation Model that are most successful and the ways in which they may be refined and replicated.

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  • Current NCI Psychotropic Medication Data and State Efforts to Combat High Rates of Medication Use

    04/2013

    On Friday, March 29, HSRI conducted a webinar on current NCI medications data and state efforts to quell high rates of medication use by the adults they serve. NCI staff began the webinar by discussing the NCI program, what the NCI data show about medication use, and specific outcomes for those who take medications. Employees from three state agencies (Massachusetts, Georgia and Missouri) then presented on steps they have taken to address high rates of medication use. Questions from the audience followed. Presentation is attached.

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  • NCI Staff To Present Poster at National Conference on Health Disparities Research at the Intersection of Race, Ethnicity and Disability

    04/2013

    On April 25, 2013, NCI staff will be presenting a poster at Health Disparities Research at the Intersection of Race, Ethnicity and Disability: A National Conference in Washington, DC. The poster will look at what NCI data show about racial and ethnic disparities in healthcare utilization faced by individuals with ID/DD.

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  • HSRI President Valerie Bradley to Speak at the 2013 Revolutionary Leaders Live Video Webinar Series

    03/2013

    Please join us for the 2013 Revolutionary Leaders Live Video Webinar Series!

    2013 Revolutionary Leaders Speakers

     

    The highly esteemed panel of speakers will share their knowledge and insight about specific topics, stories, and best practices they have discovered through their work in the disability field.

    This year's Revolutionary Leaders include: Rachel Simon, Bill Baldini, Judith Snow, Peter Leidy, Al Condeluci, Marca Bristo, Michael Kendrick, Val Bradley, Jack Pearpoint, Linda Kahn, Erick Rosenthal and Dohn Hoyle. Each speaker will present live onscreen using the latest video conferencing technology.

    This Year's Presentations will be held during the Wednesday lunch hour from 1-2:30 p.m. Eastern Time

    Dates: 5/1, 5/8, 5/15, 5/22, 5/29, 6/5, 6/12, 6/19, 6/26, 7/10, 7/17
    Time: 1-2:30 p.m., Eastern

    Register at 2013revolutionaryleaders.eventbrite.com: $18/session or $175 for the 11 speakers series.

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  • HSRI Seeks Child and Family Services Research Director

    03/2013

    HSRI is seeking a full-time Research Director to lead the Child & Family Services team in our Tualatin, Oregon office. This position offers an exciting opportunity to oversee several current large-scale child welfare projects. These efforts are primarily research or evaluation-based study, and involve partnerships with state human services agencies, local organizations and others to complete and disseminate findings. The position requires the ability to manage and oversee multiple projects, supervise project staff, develop new funding opportunities, and contribute to overall management of the office.

    More information about the position and contact information for applying can be found on our Careers page.

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  • NCI Webinar on Medication and State Efforts to Reduce Overuse

    02/2013

    As part of the NCI’s efforts to offer state DD managers and stakeholders useful data for systems change, NCI data on adults with I/DD taking  medications for mood, anxiety, psychosis and behavior will be presented on a national webinar.  NCI staff will describe differences in use of these medications by diagnosis, by residential type, and other demographic differences.  Featured will be four states’ (Ohio, Massachusetts, Missouri, Georgia) quality improvement initiatives to reduce overuse of these types of medications. This webinar is free and open to the public.

     

    Date: Friday, March 29, 2013
    Time: 1:30 pm, Eastern Daylight Time (New York, GMT-04:00)
    Meeting Number: 598 173 487
    Meeting Password: medicine

    1. Go to https://hsri.webex.com/hsri/j.php?ED=225538662&UID=1595622362&PW=NZDIxMDMwNjU4&RT=MiMxMQ%3D%3D
    2. If requested, enter your name and email address.
    3. If a password is required, enter the meeting password: medicine
    4. Click "Join".

    To view in other time zones or languages, please click the link:
    https://hsri.webex.com/hsri/j.php?ED=225538662&UID=1595622362&PW=NZDIxMDMwNjU4&ORT=MiMxMQ%3D%3D

    To join the teleconference

    Call-in toll-free number: 1-866-503-4560  (US)
    Show global numbers: https://www.tcconline.com/offSite/OffSiteController.jpf?cc=7385424346
    Conference Code: 738 542 4346

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  • Punxsutawney Pete Travels To AAIDD's 137th Annual Meeting!

    02/2013

    Join Punxsutawney Pete as he travels to Pittsburgh, PA to attend the 137th American Association on Intellectual and Developmental Disabilities' Annual Meeting June 3-6th, 2013. The 137th AAIDD Annual Meeting, Race to Catch the Future, will provide researchers, clinicians, practitioners, educators, policymakers, local, state and federal agencies, and advocates with cutting edge research, effective practices, and valuable information on important policy initiatives.

     Registration Opens Monday March 4, 2013. More information on AAID's website.

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  • Photos from Senior Vice President Stephen Leff's Celebration

    01/2013

    Photos from the January 25th, 2012 celebration of career and contributions of our colleague and Senior Vice President H. Stephen Leff. Several of Stephen's current and former colleagues were present to mark Stephen's achievements.


    Stephen Leff, HSRI Senior Vice President

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  • National Core Indicators has been profiled in Governing Magazine

    01/2013

    National Core Indicators has been profiled in Governing Magazine in an article called "Measuring Developmental Disabilities Services' Success."

    The article discusses the origins of NCI and its use as an outcomes measure. "It started around the time states began flirting with managed care," says Charles Moseley, associate executive director of NASDDDS. "And we were also starting to hear from other directors that they were getting a different kind of question from legislators during budget hearings. They didn't want to hear about outputs -- how many clients we were serving -- they wanted to know what difference we were making in these folks' lives."

    In addition, Steven Hall, Kentucky's commissioner of the Department for Behavioral Health, Developmental and Intellectual Disabilities, talks about how NCI data has helped design programs and policies that will improve the quality of life of many individuals involved with the system. Some changes impemented in KY include: "A 180-degree shift away from sheltered workshops to supported employment based on clear evidence that clients who have actual jobs report far better life outcomes than those who are simply being shuttled to and from workshops. Those with jobs reported key improvements in measures like healthier relationships, less loneliness and even less obesity, not to mention such other incidentals as higher incomes."

    GOVERNING is the nation's leading media platform covering politics, policy and management for state and local government leaders. Recognized as the most credible and authoritative voice in its field, GOVERNING provides nonpartisan news, insight and analysis on such issues as public finance, transportation, economic development, health, energy, the environment and technology.

    You can read the article here: http://www.governing.com/topics/health-human-services/col-measuring-developmental-disabilities-services-success.html

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  • HSRI discusses “Leveraging Data for Sustainability” in a SAMHSA webinar on sustaining grant-funded programs

    01/2013

    HSRI was invited to make a two-hour presentation on leveraging data to sustain funded programs, as part of a two-day sustainability webinar organized for SAMHSA’s Minority AIDS Initiative grantees funded through the Center for Substance Abuse Treatment (CSAT). The webinar was organized by the Behavioral Health and HIV/AIDS Coordinated Technical Assistance Center (CTAC). The sustainability of programs beyond the period of grant funding is a topic of increasing interest to foundations and government funding agencies, and the use of data for this purpose is an example of HSRI’s activities in conducting behavioral health program evaluations and needs assessments at  national, state and local levels. The HSRI presentation was prepared by senior researchers Nilufer Isvan and Dow Wieman and delivered by Nilufer Isvan on 12/6/2012.

    For further information about this presentation, please contact Nilufer Isvan (NIsvan@hsri.org). For information about HSRI’s expertise in monitoring program sustainability, please contact Dow Wieman (DWieman@hsri.org).

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  • NCI Data Brief on Psychotropic Medication

    12/2012

    The latest Data Brief from the National Core Indicators Project has been published on NCI’s website. The Data Brief is entitled "What does NCI tell us about adults with intellectual and developmental disabilities who are taking prescribed medications for anxiety, behavior challenges, mood disorders or psychotic disorders?". The subject of the Brief is a descriptive analysis of adults with ID/DD who take medications for the four conditions described in the title. Data on utilization of these medications and co-occurring diagnoses are presented. In addition, data on outcomes are compared between people who take one of these medications and people who do not. Some of the notable findings include a high percentage of people who take medications without a recorded diagnosis, as well as the link between taking medications and being overweight or obese. The NCI team plans to continue these analyses and publish the results in a peer-reviewed journal.

    The data brief can be downloaded from NCI's website for reading (PDF, 367kb).

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  • HSRI Evaluation Supported the Inclusion of the Six Core Strategies to Prevent Conflict and Violence

    12/2012

    The intervention Six Core Strategies to Prevent Conflict and Violence: Reducing the Use of Seclusion and Restraint (Six Core Strategies) was added to the Substance Abuse and Mental Health Services Administration (SAMHSA) National Registry of Evidence-based Programs and Practices (NREPP) in November 2012. The Six Core Strategies is a model designed for use for by institutions providing mental health treatment to children and adults admitted to inpatient or residential settings. The Six Core Strategies was developed by the National Association of State Mental Health Program Directors (NASMHPD), National Technical Assistance Center. In 2004, SAMHSA funded the first round of grantees of Alternatives to Restraint and Seclusion (ARS) State Incentive Grants (SIG) to identify effective practices to reduce and ultimately eliminate the use of seclusion and restraint. HSRI conducted the evaluation of the first round of ARS SIG grantees which included the development of a fidelity measure to assess implementation of alternatives to seclusion and restraint. Findings from the evaluation were used to support outcomes of the Six Core Strategies. The NREPP review for the Six Core Strategies can be found at the following link: http://www.nrepp.samhsa.gov/ViewIntervention.aspx?id=278.

    More information about the evaluation can be obtained from Terry Camacho-Gonsalves at tcamacho@hsri.org

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  • HSRI Senior Vice President Stephen Leff presents at the WHO's Symposium on Quality Improvement

    11/2012

    HSRI Senior Vice President Stephen Leff led a workshop and made a plenary presentation at the World Health Organization's Symposium on Quality Improvement in Suwon, South Korea.

    The subject of both the workshop and the plenary presentation was the role of planning in providing targets for the quality improvement process.

    A copy of his presentation can be downloaded for viewing here (PPT, 3 MB).

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  • HSRI Newsletter for November 2012

    11/2012

    HSRI is pleased to announce the publishing of the November issue of its newsletter. Topics covered included Vice President David Hughes speaking in a webinar series on health insurance outreach, eligibility and enrollment, the release of the National Core Indicators 2010-11 Annual Summary Report, and  the Illinois Council on Developmental Disabilities releasing HSRI's report on System Redesign.

    A copy of the newsletter may be read here. If you would like to sign up to recieve these newsletter updates via email, please enter your information in this form.

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  • 2010-11 National Core Indicators Annual Report Released

    10/2012

    HSRI and NASDDDS are pleased to announce the release of the National Core Indicators 2010-11 Annual Summary Report. The Annual Summary Report highlights selected aggregate results from several of the NCI data sources. For 2010-11, particular attention was paid to the Family Surveys data.

    The report is avaiable on the NCI website: http://www.nationalcoreindicators.org/resources/reports/

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  • NCI Publishes User-Friendly Version of the Consumer Outcomes Report

    10/2012

    NCI is excited to introduce a new User-Friendly version of the Consumer Outcomes Report. The Report uses plain language and pictures to describe select items from the Consumer Outcomes Report. We owe a great thanks to California’s Consumer Advisory Committee (CAC) who were instrumental in helping develop this new way of presenting NCI data.

    The inaugural “What We Have Learned from the NCI Adult Consumer Survey” shows 2010-11 National NCI data. In future years, along with the national report, each state will receive its own report showing the state’s specific data. The User-Friendly Reports will be released with the national data and located on the NCI website under the User-Friendly Reports section of the Reports Page.

    Thanks again to the CAC! We look forward to getting your feedback.

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  • HSRI President Valerie Bradley speaks at the National Disability Authority conference in Dublin

    09/2012

    The People with Disabilities Participating Fully and Safely in the Community Conference, held in Dublin, Ireland by the National Disability Authority invited HSRI President Valerie Bradley to speak on using National Core Indicators data to Manage  Public Systems. Below is a video recording of her presentation:

    Recording of other presentations may be found here.

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  • Follow National Core Indicators on social media!

    09/2012

    We're proud to announce that National Core Indicators presence on Facebook and Twitter! Follow them to receive news and updates about the program, as well as links to relevant developmental disabilities issues.

    Facebook IconNational Core Indicators on Facebook

    Twitter IconNational Core Indicators on Twitter (@coreindicators)

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  • Reinventing Quality Conference PowerPoint Presentations

    08/2012

    PowerPoint presentions used during the 2012 Reinventing Quality Conference are available for download in PDF format on Reinventing Quality's website:
    http://www.reinventingquality.org/upcoming/schedule12.asp

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  • The Riot! - Issue 33

    07/2012

    The Riot! Issue 32's coverWelcome to our Voting Rocks! Issue. Self-advocates are all about speaking up for themselves and others. One way to have your voice heard is to vote. This issue is about helping you get ready to vote. Inside you will find information about new voting technology, personal stories about voting, and tools to help you decide who you want to vote for.

    Download Issue 32

    You can visit The Riot! website here: www.theriotrocks.org

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  • Working Toward A Sustainable Future for Developmental Disability Service Systems

    06/2012

    AAIDD recently convened its annual meeting in Charlotte, North Carolina. At this conference John Agosta and Jon Fortune gave a presentation entitled “Working Toward A Sustainable Future for Developmental Disability Service Systems.” The PowerPoint presentation that was given may be viewed and downloaded here (PDF, 6.2mb). In addition a description of the presentation is as follows:

    Demand is steadily increasing for developmental disability services. Meanwhile, states are having trouble finding the funding for additional services, and stuck with outdated service arrays that people increasingly don’t want. In response, states are looking for ways to make their service systems more efficient and equitable while promoting outcomes tied to community integration and self-direction. What can be done? This presentation offers discussion on these circumstances, and describes means for using the Supports Intensity Scale for allocating individualized budget allocations as well as a promising approach to address support needs. This approach blends together three resources, including services offered by public agencies, supports that people with disabilities, their families and others may offer to one another, and supports offered by businesses and community serving organizations. By considering these and other responses, service systems can become fairer, more efficient and increasingly sustainable–all while promoting valued outcomes for people with developmental disabilities.

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  • NASDDDS and HSRI Present at AAIDD Annual Meeting

    06/2012

    The American Association on Intellectual and Developmental Disabililties held its 136th Annual Meeting this week in Charlotte, North Carolina. NASDDDS and HSRI staff were there presenting on NCI data, specifically on the following topics: employment, psychtropic medications, and obesity. You can download the PowerPoints by visiting the Presentations page on NCI's website, or directly download a copy from the two links below:

    Psychotropic Medication Use and Obesity Among IDD Service Recipients in 15 States (PPT, 340kb)

    What Working in the Community Means: Employment and Outcomes for Adults with Intellectual and Developmental Disabilities from Across the United States (PPT, 1.5mb)

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  • Remembering Hank Bersani

    06/2012

    Almost everyone here could stand up and talk about the extraordinary career and contributions of our dear friend and colleague – the irrepressible, passionate, and gifted Hank Bersani. It falls to me to represent all of you and pay homage to our absent friend and to try and capture his spirit in some personal recollections.

    Hank – or the Hankster as I liked to call him – had deep roots in our field and was mentored by some of the previous generation’s giants including Burton Blatt, Wolf Wofensberger, and Gunnar Dybwad – all of whom, like Hank had a connection to Syracuse University where Hank got his Ph.D. He took something from each one of them and combined their wisdom into his own critical vision of the field of intellectual and developmental disabilities.

    That vision – and the energy with which he pursued it – made him an extremely popular presenter around the country – particularly as a regular at Partners in Policymaking events. He was a wonderful speaker and quickly engage his audience. What most audiences didn’t know was that he got serious stage fright before such events but once launched on his message, the fright quickly subsided. I often thought that Hank was an introvert trapped in an extravert's body.

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  • Illinois at the Tipping Point: Blueprint for System Redesign Update Released

    06/2012

    Illinois is at a tipping point. Policy makers are committed to moving the service system for people with intellectual and other developmental disabilities (I/DD) forward to achieve financial sustainability and deliver high quality person-centered supports, while also serving additional citizens waiting for services. 

    In 2007, the Illinois Council on Developmental Disabilities awarded a grant to the HSRI to review the state’s system for delivering services to people with intellectual and other developmental disabilities (I/DD). Two primary reports resulted: (a) a gap analysis assessing 2007 performance, and (b) a Blueprint for System Redesign providing action steps for closing any noted gaps.

    In 2011, the Illinois Council on Developmental Disabilities asked HSRI to refresh the findings originally described in the Gap Analysis project conducted in 2007, review the progress made in Illinois since 2008 to implement the Action Steps recommended by the  original Blueprint, and offer additional recommendations as warranted. This report presents a strategic assessment of the Illinois service system for people with I/DD, from 2008 to the present.

    The report can be downloaded here.

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  • HSRI is hiring: Senior Research Analyst (DD)

    05/2012

    HSRI is seeking a motivated Senior Research Analyst for its Oregon office. For more information and to submit your resume, please visit our Careers page.

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  • National Core Indicators' Data Implementation Guide Published

    05/2012

    This handbook was created to enhance the use and application of information generated through the collection of data a part of National Core Indicators (NCI). The audience for this guide includes managers of public intellectual and developmental disabilities (ID/DD) systems, providers of services, board members, people with disabilities and their family members, and other interested advocates.

    The guide may be viewed either on the web or downloaded as a PDF file here:
    http://www.nationalcoreindicators.org/resources/guides/

    Read More

  • Global Accessibility Awareness Day 2012

    05/2012

    Global Accessibility Awareness Day is a community-driven effort whose goal is to dedicate one day to raising the profile of and introducing the topic of digital (web, software, mobile app/device etc.) accessibility and people with different disabilities to the broadest audience possible. The event also promotes trying to operate a computer for an hour without a mouse using only assistive tools such as a Screen Reader, in order to get a better understanding of how users with disabilities interact with technology on a regular basis.

    http://www.mysqltalk.com/gaad.html

    Read More

  • Protecting Children Journal on Differential Response is Published

    05/2012

    An experimental research design is often touted as the gold standard for establishing cause and effect; nonetheless, implementing this type of methodology in a socially complex environment can pose difficulties that might otherwise be underestimated. This article chronicles the successes, challenges, and methods used to overcome challenges experienced by researchers in a randomized control trial evaluating the impact of Differential Response in Ohio; Differential Response is a child welfare intervention approach used with families reported for child abuse and neglect.

    Read More

  • HSRI is hiring: Senior Research Analyst (DD)

    05/2012

    HSRI is seeking a motivated Senior Research Analyst for its Oregon office. For more information and to submit your resume, please visit our Careers page.

    Read More

  • Community Inclusion Survey

    05/2012

    HSRI is currently conducting an online national survey about the costs of programs focused on the community inclusion of individuals with psychiatric diagnoses for the Temple University Collaborative on Community Inclusion for Individuals with Psychiatric Disabilities. We hope to learn more about the costs associated with these programs to inform technical assistance efforts for organizations implementing or planning to implement these types of programs.

    If you or your organization may be interested in participating in this survey, or if you would like additional information, please contact Ben Cichocki at 617-844-2500 x2502 or bcichocki@hsri.org.

    Read More

  • HSRI Presentations at IASSID World Congress and AAIDD Annual Meeting

    04/2012

    HSRI staff will be presenting several papers at the upcoming AAIDD Annual Meeting in Charlotte, North Carolina in June and the IASSID World Congress in Halifax, Nova Scotia in July. Presentation topics at the AAIDD meeting will focus on NCI results, including community employment, family outcomes, and data related to the use of psychotropic medications, but also on HSRI’s work pertaining to building individualized budgets based on a measure of individual support needs. Likewise in Halifax, the NCI program will be the focus of a plenary session entitled “National Core Indicators: Outcomes and Services for Adults with Intellectual Disabilities,” presented jointly by Roger Stancliffe from the University of Sydney and Sarah Taub from HSRI. HSRI and our partners at NASDDDS are excited about the opportunity to share NCI findings with an international network of colleagues. In addition, HSRI staff will also be presenting on work related to self-advocacy, systems change and establishing individualized budgets.

    More information about the conferences is available here:
    http://www.aaidd.org/content_6546.cfm
    https://iassid.org/conference/index.php/HPC/2012IWC

    Plenary information is available here:
    https://iassid.org/conference/index.php/HPC/index/pages/view/Plenary

    Read More

  • The Riot! - Issue 32

    04/2012

    The Riot! Issue 32's coverWelcome to our We Are Family issue. Siblings can be our best friends and our biggest rivals. They make life both wonderful and challenging. In this issue, we celebrate siblings with stories, ideas and information about what it is like to be in a family of children with and without disabilities.

    Download Issue 32

    You can visit The Riot! website here:  www.theriotrocks.org

    Read More

  • Reminder: Reinventing Quality Conference: August 8-10, 2012

    04/2012

    Reinventing Quality 2012 Conference Logo

    HSRI, along with our colleagues at the University of Minnesota, National Association of State Directors of Developmental Disabilities and the University of Delaware have, for many years, sponsored the Reinventing Quality Conference. This year’s conference will be held in Baltimore, MD from August 8-10, 2012. It will feature a range of exciting presentations, and will provide information, new ideas and active discussions about person-centered planning, employment innovations, self-advocacy and more for people with intellectual and developmental disabilities. 

    Both the 2008 and 2010 Reinventing Quality conferences attracted over 700 disability professionals, people with disabilities, family members, advocates, and state and federal officials. The goal of the Reinventing Quality Conference is to provide information, new ideas and active discussion about the point of view of people with disabilities and their families -- and the systems and supports needed to improve the quality of life and citizenship for people with disabilities.

    Please go to www.reinventingquality.org for more information about the program and to register for the conference.

    Read More

  • In Memory of Dr. Henry “Hank” Bersani

    04/2012

    Dr. Henry "Hank" Bersani

    On March 31st, 2012, Hank Bersani, a dear friend and colleague to us at HSRI, passed away following a bicycle accident in Monmouth, Oregon. He was 61.

    Hank was a respected leader in the field of developmental disabilities, especially in matters pertaining to special education, research and policy.  More particularly, he provided direction many of us with sage advice on how to provide to provide supports that ensure that people with developmental disabilities live real lives of their choosing in the community.  He was relentless in a relentless advocate and no one fought harder for the rights of people with disabilities.

    Hank held positions at Syracuse University, Oregon Health & Sciences University, and Western Oregon University.  He also served as a Joseph P. Kennedy Jr. Public Policy Fellow, a Mary Switzer Distinguished Research Fellow with the National Institute on Disability and Rehabilitation Research, and was assigned to U.S. Senator John H. Chaffee’s office.  He was the recipient of many distinguished awards, including the Mario and Alma Pastega Scholarship Award, the Multnomah County Arc Educator of the Year Award, the Rosemary F. Dybwad International Travel Fellowship Award, and the Franklin Smith National Service Award of the Arc of the US.

    Hank’s work afforded many opportunities for collaboration with HSRI.  Several of us fondly remember working with Hank on initiatives across the United States and internationally.  In fact, for a time, Hank shared space with HSRI staff in our Oregon offices.  In addition, his wife, Lynda, was employed previously at HSRI.

    Aside from the wide span of his achievements and awards, we remember Hank as a caring teammate, an excellent story teller, a terrific father and husband, and above all as the whirlwind bright light that lit up any room he entered.  He touched all our lives.

    Dr. Bersani is survived by his wife, Lynda, of Monmouth, his son and daughter, Lisa and Alex, of Portland, his sister, Mary Beth, and his parents, Henry and Mathilda Bersani.

    Hank, dear friend, we miss you already.

    Read More

  • Sprout Film Festival

    04/2012

    HSRI is collaborating with Inclusion, Inc. in Portland, Oregon to host a local Sprout Film Festival on May 12.  The festival is being held to raise funds for The Riot and Inclusion, Inc. and will feature entertaining and memorable films related to people with developmental disabilities. The festival includes film showings, an auction and reception.  If you are in the Portland area we hope you will attend!  For more information go to: http://www.theriotrocks.org/products/sprout-2012

     

    Read More

  • HSRI is hiring!

    03/2012

    HSRI is seeking a motivated Senior Research Analyst for its Oregon office. For more information and to submit your resume, please visit our Careers page.

    Read More

  • Administration on Developmental Disabilities Awards Funding for NCI Expansion

    01/2012

    The Administration on Developmental Disabilities (ADD) has awarded NASDDDS $1.5 million dollars over five years in order to expand and improve NCI. Below is a press release from ADD:

    The U.S. Department of Health and Human Services (DHHS), Administration for Children and Families (ACF), Administration on Developmental Disabilities (ADD) has awarded a five year contract totaling $1.5 million to the National Association of State Directors of Developmental Disabilities Services (NASDDDS), of Alexandria, VA to increase their efforts with the National Core Indicators (NCI) Project.

    "We are very excited about supporting the qualitative approach to understanding the DD service system that the National Core Indicators offers, and helping NASDDDS expand this effort to more States. The NCI data is a useful tool for service systems, researchers, policymakers, families and individuals with developmental disabilities, and will be a great addition to the longitudinal data projects that ADD funds."

    In all, 11 states applied to receive funding to join in NCI in the first year of this contract. We are pleased to announce the five states who were accepted to receive this funding to support their ability to measure and track service outcomes and performance during this first year: Virginia, Maryland, South Carolina, Michigan, and Connecticut. Another five states will be selected over the next few months for year two. For more information, please contact Josh Engler at jengler@hsri.org.

    Read More

  • The North Carolina Technical Assistance Collaborative Releases Reports

    03/2012

    In 2008, the North Carolina Council on Developmental Disabilities (NCCDD) convened a summit of developmental disabilities stakeholders to discuss areas of system change. To assist state officials with implementation of Summit recommendations, the NCCDD engaged Human Services Research Institute (HSRI) and other topic experts to provide technical assistance.

    The following two reports are part of this effort.

    A Strategic Analysis for Change: Action Steps - For Responding to the Needs of People with Developmental Disabilities in North Carolina

    A Strategic Analysis for Change: Planning Context - Responding to the Needs of People with Intellectual and Other Developmental Disabilities in North Carolina

    Read More

  • Reinventing Quality Conference: August 8-10, 2012

    03/2012

    Reinventing Quality 2012 Conference Logo

    HSRI, along with our colleagues at the University of Minnesota, National Association of State Directors of Developmental Disabilities and the University of Delaware have, for many years, sponsored the Reinventing Quality Conference. This year’s conference will be held in Baltimore, MD from August 8-10, 2012. It will feature a range of exciting presentations, and will provide information, new ideas and active discussions about person-centered planning, employment innovations, self-advocacy and more for people with intellectual and developmental disabilities. 

    Both the 2008 and 2010 Reinventing Quality conferences attracted over 700 disability professionals, people with disabilities, family members, advocates, and state and federal officials. The goal of the Reinventing Quality Conference is to provide information, new ideas and active discussion about the point of view of people with disabilities and their families -- and the systems and supports needed to improve the quality of life and citizenship for people with disabilities.

    Please go to www.reinventingquality.org for more information about the program and to register for the conference.

    Read More

  • The Riot! - Issue 31

    01/2012

    Self-advocates, don’t let the same old crap get you down.

     

    We are stronger together! This issue of The Riot! Is about the work we need to do in 2012. With a tough economy and more cuts to services happening, let’s make sure states make better choices and fund programs that support people to have real jobs and a real life.

     

    Download File

     

    You can visit The Riot! website here:  www.theriotrocks.org

    Read More

  • Jon Fortune, Ed.D. recognized as a FAAIDD Fellow

    03/2012

    HSRI is pleased to announce that Jon Fortune, Ed.D. is being recognized as a Fellow of the American Association on Intellectual and Developmental Disabilities (FAAIDD).  This distinction is presented to him in recognition of his considerable contributions to the field of disability and for his service to the Association.

    Read More

  • National Core Indicators (NCI) Launches New Website

    02/2012

    HSRI 35th logoHSRI and NASDDDS are pleased to announce that the new and improved National Core Indicators (NCI) website is now live!  Along with a fresh look and expanded information about NCI and participating states, the new site includes an enhanced chart generator.  This feature allows users to create customized charts of NCI data using filters such as state, type of residence, year, and many others. Users can also easily access documents such as the NCI member states' most recent state reports.

    Read More

  • HSRI seeks a full-time Program Director to lead the Child & Family Services Team

    11/2011

    The Human Services Research Institute (HSRI) seeks a full-time Program Director to lead the Child & Family Services team in our Tualatin, Oregon office.

    This position offers an exciting opportunity to oversee several current large-scale child welfare projects. These efforts primarily involve research or evaluation-based study. In addition, such work involves partnership with state human services agencies, local organizations and others to complete and disseminate findings.

    For additional information please click the 'Read More' link below.

    Read More

  • Report Released: National Core Indicators (NCI) 2009-10 Annual Summary Report

    10/2011

    The 2009-2010 Annual Summary Report highlights the most interesting information collected from all the NCI survey tools over the 2009-10 data collection period. The cover was designed by Daniel May- a self-advocate from Canada.

    For more information on NCI, please visit www.nationalcoreindicators.org.

    2009-2010 Annual Summary Report

     

    Read More

  • ADD Funds Data Collection For Supporting Families Project

    10/2011

    HSRI is proud to be a part of the Supporting Individuals and Families Information Systems Project

    "As more families continue to be the primary support structure for many people with developmental disabilities across the lifespan, we need to better understand the needs of these families, and what services and supports are available to them. This project will provide important data to inform service systems, researchers, policymakers, and families." said Commissioner Sharon Lewis of ADD.

    For more information and to read the full news release, click on the 'read more' link below.

    Read More

  • HSRI President Valerie J. Bradley Presents to the Irish National Disability Authority

    10/2011

    Val Bradley recently presented an overview of the National Core Indicators program to approximately 250 attendees in Dublin, Ireland.  The theme of the conference was "People with disabilities participating fully and safely in the community", and the title of the presentation was "National Core Indicators:  Using Data to Manage Public Systsems"

    You can download the powerpoint slides below:

    Irish National Disability Authority Presentation

     

    Read More

  • The Riot! - Issue 30

    10/2011

    This issue is Part 2 of 2 about jobs. In our last issue we talked about things that get in the way of self-advocates getting real jobs for real pay - like being stuck in workshops and day programs. We are still feeding the dinosaur.

    But there’s good news! Policy makers, advocates, and state leaders all over the country are working on “Employment First” policies to create Real Community Jobs.

    Download File

     

    You can visit The Riot! website here:  www.theriotrocks.org

    Read More

  • Take the Self-Advocacy Survey!

    10/2011

    funny survey image

    Please help us! We want to hear from self-advocates from around the country about their self-advocacy groups. Self-advocates are people with disabilities who speak up for themselves. If you are a self-advocate AND a member of a self-advocacy group, please fill out this survey.

    Take the Survey!

    Read More

  • AFP - Summit 2.0: Real Jobs--It's Everyone's Business

    09/2011

    AFP Logo

    On November 17-19, 2011, we invite you to be a part of an historic national conference that seeks to find solutions to the challenges facing increasing integrated employment for people with intellectual and developmental disabilities. 

    HSRI is proud to help sponsor this highly interactive convening of the leaders of the intellectual and developmental disabilities community to address the challenges and barriers facing increasing integrated employment for people with IDD.

    Register Now!

    Read More

  • HSRI Welcomes Rick Sampson as Project Director

    08/2011

    Experienced Leader Brings Wealth of Knowledge

    HSRI is pleased to announce Rick Sampson as Project Director for the Data Analysis Coordination and Consolidation Center (DACCC) of SAMHSA’s Center for Substance Abuse Prevention (CSAP). Mr. Sampson will oversee the DACCC, a CSAP initiative providing comprehensive data and analytic resources to support program planning, policy decisions, and the advancement of knowledge in the substance abuse prevention field.

    Mr. Sampson is an accomplished health and human services professional, bringing 36 years of clinical, research, and management experience to HSRI and DACCC. Through leadership roles held in the public and private sectors, Mr. Sampson was responsible for the implementation and development of behavioral health services and programs, as well as the successful management of federal, state and local government contracts and grants.

    Read More

  • HSRI Celebrates its 35th Anniversary

    08/2011

    HSRI 35th logoThis month the Human Services Research Institute will celebrate the 35th anniversary of its founding.  We want to thank all of our loyal colleagues and friends who, over the years, have been our collaborators, supporters, mentors, and friends.  We also want to recognize all of the people who have worked for HSRI over the years – each of whom has made a lasting contribution to HSRI.

    We are all privileged to work in the field of disability and family and child services and hope for the continuing opportunity to assist public managers, providers and advocates around the country.

    Read More

  • Dr. Virginia Mulkern has been elevated to the position of Executive Vice President of HSRI

    06/2011

    The Human Services Research Institute is proud to announce that our valued colleague, Dr. Virginia Mulkern, has been elevated to the position of Executive Vice President of HSRI. Dr. Mulkern has been with the Institute since 1982. In her new capacity, Dr. Mulkern will take on additional administrative duties and will provide valuable support to the President as well as to the leadership team as a whole.

    Dr. Mulkern, who is a sociologist, has worked in the field of behavioral health services and evaluation for more than thirty years. She has taught courses in evaluation methods and medical sociology at both the undergraduate and graduate levels.   Dr,. Mulkern has managed over 40 federal and state grants and contracts, most related to behavioral health services research. 

    All of us at HSRI look forward to working with her in the new capacity.

    Read More

  • New self-determination resource now available from the Riot!

    06/2011

    The Riot is excited to announce that Space Race is now available for purchase at www.theriotrocks.org/products/space-race.  The Space Race game is a new resource for developmental disability service providers, transition specialists, self-advocates, and others involved in person-centered planning processes or in teaching people how to use self-directed supports. 

    Read More

  • Juntos Podemos/Together We Can Family Center: 2011 El Día del Niño/Day of the Child

    06/2011

    Celebrating the 6th Annual El Día del Niño/Day of the Child and its’ 6 year anniversary, children and families join Juntos Podemos/Together We Can Family to honor the special place that all children have within families, and community.  This year we celebrated with a host of community partners, organizations, volunteers and community members and doubled our previous attendance to more than 400 children and families.  This cultural celebration opened with a splendid and colorful representation of Aztec dancing by Danza Azteca in their third invitation to kick-off the day. Featuring our annual Kids Corner Crafts with our themed art project of mini Piñatas and “One of a Kind Drumline” Youth Corp Led by Director Eddie Esparza, this years’ festivities grew to include new partners and more diverse events. Watch and enjoy the day!!

    Read More

  • Self-advocates release report on the meaning of community living to advise policy

    05/2011

    Self-advocates from the National Youth Leadership Network (NYLN), Self-Advocates Becoming Empowered (SABE), and the Autistic Self-Advocacy Network (ASAN) have released their report on the meaning of community living to advise policy.

    Read More

  • Documents Available for Download: Evaluation of Ohio's Title IV-E Waiver Demonstration Project

    05/2011

    The Evaluation of Ohio's Title IV-E Waiver project has released five documents for download.

    They include:

    You can download these documents by clicking on the links above, or by visiting the The Evaluation of Ohio's Title IV-E Waiver project page here: http://www.hsri.org/project/evaluation-of-ohio-title-iv-e-waiver

    Read More

  • The Riot! Joins College of Direct Support Curriculum Offerings

    04/2011

    SOURCE Elsevier

    ATLANTA, Georgia, April 26, 2011 /PRNewswire-FirstCall/ --

    - Prominent Newsletter Written by and for Individuals With Disabilities Provides Resource for Direct Support Professionals

    The College of Direct Support (CDS) ( http://info.collegeofdirectsupport.com/), an internet-based curriculum for Direct Support Professionals (DSPs) and managed in partnership by Elsevier | MC Strategies (http://www.mcstrategies.com/) and the University of Minnesota's Research and Training Center, has announced the addition of a new genre of courses based on "The Riot!" - a quarterly newsletter written by and for self-advocates.

    Read More

  • HSRI is Hiring!

    04/2011

    HSRI is seeking motivated individuals for the following positions:

    • Project Assistant
    • Research Analyst

    For more information and to submit your resume, please visit our Careers page.

    Read More

  • Lilia Teninty to Join the Human Services Research Institute

    04/2011

    Brings key experiences and knowledge to HSRI’s Developmental Disabilities Policy Team

    We are pleased to announce that Lilia Teninty, M.PA., has joined the Human Services Research Institute as a Senior Policy Specialist. Ms. Teninty will focus on a variety of HSRI priorities, including system re-design, resource allocation, self-directed services, family support, and quality improvement. As always, in this work she will team with others at HSRI to generate policy solutions to promote community integration and self-direction.

    Please join us in welcoming Ms. Teninty to HSRI. Her strong management experiences as a state policy maker, coupled with her knowledge of the field and her commitment to community centered policy solutions assure that she will make significant contributions to our work and the field overall.

    Beginning April 18, 2011 Ms Teninty may be reached by email at: LTeninty@hsri.org

    Read More

  • HSRI to Implement the North Carolina Relationships Initiative

    04/2011

    HSRI is implementing the North Carolina Relationships Initiative to identify reasons why self-advocates experience loneliness and barriers to relationships in their daily lives.  Project staff will host focus groups and conduct interviews with self-advocates, family members, and provider agency staff who live in urban and rural communities around the state.  Resulting information will reveal what gets in the way of self-advocates experiencing relationships and also what supports self-advocates need to have relationships.  We will use this information to challenge local self-advocates working together to address identified barriers and to develop policy recommendations that increase opportunities for self-advocates to experience safe and healthy relationships in their daily lives.

    The project page is available here:
    http://www.hsri.org/project/north-carolina-relationships-initiative

    Read More

  • Reports Available for Download: 3 Data Briefs and the Consumer Outcomes Final Report for 2009-10

    04/2011

    National Core Indicators has released 3 new Data Briefs and the Consumer Outcomes Final Report for 2009-10.

    The Date Briefs are:

    The Consumer Outcomes Final Report for 2009-10 serves as the final report for the consumer outcomes portion of Phase XII (2009-2010) National Core Indicators (NCI) data collection. All consumer survey data submitted between July 2009 and June 2010 are included in this report.

    You can download these reports by clicking on the links above, or by visiting www.nationalcoreindicators.org and navigating to the Reports page.

    Read More

  • National Core Indicators Mentioned in Parade Magazine's Featured Story on "Autism’s Lost Generation"

    04/2011

    This past weekend Parade Magazine’s feature story on “Autism’s Last Generation” cited the National Core Indicators program, a long-standing data collection effort across half the states and coordinated by HSRI and NASDDDS.  The article references an NCI Data Brief on Autism from 2008.

    You can read the article here:  http://www.parade.com/health/autism/featured/autisms-lost-generation.html

    We are also pleased to announce that three new NCI Data Briefs have just been posted to www.nationalcoreindicators.org, including an update of the Autism issue.  You can find them on the reports page.

    Spread the word and join us in observing National Autism Awareness month!

    Read More

  • Report Available for Download: National Accreditation of Community Service Providers to Individuals with Intellectual and Developmental Disabilities

    03/2011

    The Missouri Department of Mental Health, Division of Mental Retardation and Developmental Disabilities engaged HSRI to conduct a survey of the 50 states to determine current state quality management practices pertaining to provider national accreditation.

    Download File

    Read More

  • The Riot! featured in Apostrophe Magazine

    02/2011

    Apostrophe, a magazine for people with disabilities, recently reported on The Riot!'s new website in an article titled: Self-advocacy newsletter launches new website.   The new website features improved acessibility controls, toolkits, products, games, and showcases work from Spotlight Studios, a gallery dedicated to displaying work from artists with intellectual and developmental disabilities.

    "Together, we take a tough and honest look at sensitive issues like closing institutions, silly rules that keep people down, disability pride and intimate relationships.  We tell it like it is - Riot style, with a purpose and a sense of humor."

    - HSRI Policy Associate Jaime Daignault

    Apostrophe is a quarterly magazine involved in the lives of people affected by intellectual disabilities, providing jobs, opportunities, resources and support. The article may be accessed on page 52 in the article viewer in the following link (requires Flash):
    http://apostrophe.journalgraphicsdigital.com/current/

    Read More

  • The Riot! - Issue 27

    01/2011

    Welcome to the Art Issue!

    With this issue, our goal was to raise awareness, celebrate artists with disabilities, and challenge misperceptions about people with disabilities and their ability to create something of value. We also introduced the Riot’s new online art gallery, Spotlight Studios.

    How well did we do at reaching our goals? See for yourself. Check out the Art Issue and have yourselves a regular Riot!

    Download File

     

    You can visit The Riot! website here:  www.theriotrocks.org

    Read More

  • The Riot! Launches New Website

    01/2011

    Rowdy Riot gets a redo!

    The Riot! has changed a lot over the past six years! It has grown from an eight-page newsletter with a few hundred subscribers to a popular publication with a huge following and a national and international reputation!

    Today, the Riot! is much more than a newsletter – it’s an enterprise. It grew from an unruly tendril to a rowdy vine with no place to go. We had to give it more room and we had to do something fast! So we gave The Riot! a new look and a new website where you can talk it up on the blog with other readers and see products and services that promote self-advocacy and self-determination. You can also visit Spotlight Studios, an online art gallery that celebrates artists with intellectual and developmental disabilities. Who knew that if you put it in the sun, it would grow?!

    Check out the new riot website: www.theriotrocks.org and have yourselves a regular Riot!

    Read More

  • HSRI is Hiring

    01/2011

    HSRI is seeking motivated individuals for the following positions:

    • Project Director
    • Editor/Quality Control Manager
    • Logistics Coordinator
    • Research Analyst

    For more information and to submit your resume, please visit our Careers page.

    Read More

  • HSRI Research Fellow Mady Kimmich Publishes Article on Child Welfare Service Intervention Challenges

    01/2011

    Maddy's article, Challenges in Measuring the Fidelity of a Child Welfare Service Intervention, discusses the challenges practitioners faced in implementing family team meetings, and evaluation challenges encountered in specifying, measuring, and reporting on model fidelity.

    The article's Abstract maybe accessed here:
    http://www.informaworld.com/smpp/963944592-20220080/content~db=all~content=a931192853~frm=abslink

    An account at informaworld is required to subscribe to or purchase and view this article.

    Read More

  • Evaluation Brief: ProtectOHIO Evaluation Overview Brief

    11/2010

    HSRI is pleased to announce the publication of the ProtectOHIO Evaluation Overview Brief. This evaluation brief provides an introduction to the ProtectOHIO IV-E Waiver evaluation effort and an overview of interesting quantitative and qualitative findings. A summary of implementation findings, the strategy substudies (family team meetings, kinship supports, enhanced mental health/ substance abuse, and supervised visitation), child outcomes regarding placement duration, permanency, and safety, as well as fiscal outcomes are all included in this brief.

    Read More

  • Report Released: National Core Indicators (NCI) 2008-09 Annual Summary Report

    11/2010

    HSRI and NASDDDS are pleased to announce the release of the National Core Indicators 2008-09 Annual Summary Report. The Annual Summary Report highlights selected aggregate results from several of the NCI data sources. For 2008-09, particular attention was paid to:

    1. Whether people living in different residential arrangements experienced different outcomes, and

    2. Whether people with a dual diagnosis of intellectual disabilities (ID) and mental illness had outcomes that differed from people with ID only.

    You can download the entire report here: http://www.hsri.org/publications/download/nci-annual-summary-report-2008-2009

    For more information on NCI, please visit www.nationalcoreindicators.org.

    Read More

  • HSRI is Hiring

    12/2010

    HSRI is seeking a motivated individual for the position of Research Analyst.

    For more information and to submit your resume, please visit our Careers page.

    Read More

  • HSRI President Valerie Bradley speaks about the financial crisis and the changing face of Medicaid

    11/2010

    The Council of Developmental Disbilities, Task Force on Transparency and Protection—HSRI President Valerie Bradley will be discussing today’s reality and trends (present and future) impacting Medicaid Services as it relates to the fiscal crisis states find themselves in. A review of cost containment strategies (especially for Medicaid DD-ID Waivers) will be offered with an emphasis on their effectiveness and consequences for State budgets, providers and people with developmental disabilities.

    Read More

  • DOJ settlement with Georgia specifies use of NCI for quality assessment

    11/2010

    In the recent settlement agreement between the U.S. Department of Justice (DOJ) and the State of Georgia, the State agreed to expand home and community-based services to 750 individuals with developmental disabilities who are currently residing in institutional settings and to prevent institutional placement of another 400 individuals currently living in the community.  As a provision of the settlement, DOJ stipulates that the State will institute a quality management system, including a specific directive that participant feedback about the system shall be gathered through participation in the National Core Indicators (NCI) program.

    Read More

  • Evaluation briefs: Family Team Meetings (FTM) and Kinship Supports Strategy

    10/2010

    HSRI is pleased to announce the publication of two evaluation briefs regarding the Family Team Meeting (FTM) and Kinship Supports strategies from the ProtectOHIO IV-E Waiver evaluation. These evaluation briefs provide an introduction to the evaluation of these substudies, presenting interesting quantitative and qualitative findings. Family Team Meetings are a method for engaging family members and other people who can support the family for shared case planning and decision-making. Kinship Supports strategy counties intended to increase their use of kinship settings for children who could not remain in their birth homes and to support those kinship placements via a variety of efforts including specialized staffing and access to purchased supports. Permanency and safety outcomes are included for each strategy sub-study, as well as implementation findings.

    Read More

  • HSRI Awarded the Services in Supportive Housing Program National Outcomes Evaluation

    10/2010

    HSRI was awarded the Services in Supportive Housing (SSH) Program National Outcome Evaluation by the Substance Abuse and Mental Health Services Administration (SAMHSA), Center for Mental Health Services (CMHS). HSRI will partner with the University of Pennsylvania, Center for Mental Health Policy and Services Research and the Technical Assistance Collaborative, Inc. to conduct the evaluation.

    SAMHSA/CMHS has funded 62 sites nationwide through the SSH program to help prevent or reduce chronic homelessness by providing services for individuals and families living in Permanent Supportive Housing (PSH) programs. The SSH program targets persons and families who have experienced chronic homelessness. The two primary purposes of the SSH Program National Outcome Evaluation are to evaluate (1) grantees’ fidelity to the PSH model, and (2) the comparative effectiveness of different evidence-based practices for people who are or have been homeless. The focus of the evaluation will be on: the context in which the grantees are operating; the processes established to provide services to individuals and families experiencing chronic homelessness; the services and activities established; and the outcomes achieved such as preventing or reducing chronic homelessness, improving functioning, and promoting recovery and other positive outcomes for consumers. Dr. H. Stephen Leff, Senior Vice President at HSRI will serve as Project Director for the project.

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  • HSRI Vice President David Hughes Comments on Milwaukee's Mental Health Care Overhaul

    10/2010

    David speaks about the 3-5 year "culture shift" caused by Milwaukee County eliminating nearly all inpatient psychiatric care, replacing it with private inpatient care and expanded outpatient treatment options.

    The Milwaukee Journal Sentinel article can be found here:

    http://www.jsonline.com/watchdog/watchdogreports/104414474.html

    Read More

  • HSRI Vice President David Hughes speaks on NPR about the Milwaukee County Mental Health System

    10/2010

    David speaks to NPR affiliate WUWM Milwaukee about a report  recommending broad reforms in the way the county delivers mental health services, particularly regarding inpatient treatment.

    Listen to the broadcast here:

    http://www.wuwm.com/programs/lake_effect/le_sgmt.php?segmentid=6445

    Read More

  • Statements Released: Milwaukee County Mental Health Redesign Report

    10/2010

    Representative Sandy Pasch, from the Wisconsin State Legislature, released the following statement: 

    “Today, the Public Policy Forum released a report that details many challenges facing the delivery of mental health services in Milwaukee County and makes a number of recommendations to improve the quality of mental health care within our community. I appreciate the thoughtful analysis done by the Public Policy Forum and its partners on this report. Their inclusion of the numerous stakeholders affected by these critical problems – especially consumers of mental health services – displays a sincere respect for the experiences, viewpoints, and recommendations of all involved. I hope this information will be effectively utilized as we move ahead to address the neglect of mental health services through establishing solutions that ensure safe, effective, and dignified care.”

    The statement can be found here:  http://thewheelerreport.com/releases/October10/Oct6/1006paschmentalhealth.pdf

    Joseph A. Rice, Milwaukee County Supervisor, released a statement that included the following:

    “The report provides needed data that should be relied upon by policy-makers prior to any decisions on spending tax dollars to construct a new hospital. Such critical analysis should drive the process rather than precipitous action in pursuit of short- term political gains,” Rice concluded.

    The full release can be found here:  http://thewheelerreport.com/releases/October10/Oct6/1006milricementalreport.pdf

    Read More

  • Media Release: Mental Health Redesign Recommendations Chart a New Course for Our Community

    10/2010

    Disability Rights Wisconsin has announced the release of the Milwaukee County Mental Health System Redesign report.

    Today, the study recommendations developed by national consultants, and grounded in extensive data collection and analysis, have been released. They provide our community with a historic opportunity to transform our adult mental health system and ensure better lives for our friends, family members, and neighbors who experience mental health concerns. Today, the study recommendations developed by national consultants, andgrounded in extensive data collection and analysis, have been released. They provide our community with ahistoric opportunity to transform our adult mental health system and ensure better lives for our friends, familymembers, and neighbors who experience mental health concerns."

    You can visit the Disability Rights Wisconsin website here:  http://www.disabilityrightswi.org

    And you can download the full media release by clicking on the 'download file' link below.

    Read More

  • HSRI is Hiring!

    10/2010

    HSRI is seeking motivated individuals for the following two positions:

    • Research Analyst
    • Project Assistant

    For more information and to submit your resume, please visit our Careers page.

    Read More

  • Media Release: Report calls for redesigned mental health system in Milwaukee County with greater emphasis on community-based treatment and care

    10/2010

    The Public Policy Forum has announced the release of the Milwaukee County Mental Health System Redesign report.

    “No single report can tell the entire story of a county’s populations in need, and the services required or the barriers that exist to meeting those needs,” said David Hughes of Human Services Research Institute (HSRI), the lead consultant on the project. “However, the information in this report and the process by which the information was developed can provide a powerful impetus to create an improved behavioral health system throughout Milwaukee County.”

    You can visit the Public Policy Forum website here:  http://www.publicpolicyforum.org

    And you can download the full media release by clicking on the download link below.

    Read More

  • Final Report: Transforming the Adult Mental Health Care Delivery System in Milwaukee County

    10/2010

    HSRI has released the Final Report for the The Milwaukee County Mental Health System Redesign project.  This report presents the findings from a comprehensive planning effort to redesign the mental health care system in Milwaukee County, conducted by Human Services Research Institute in partnership with the Public Policy Forum and the Technical Assistance Collaborative, Inc.

    The project was initiated in October 2008 by the Milwaukee Health Care Partnership, the Medical Society of Milwaukee County, and the Milwaukee County Behavioral Health Division. Other stakeholders were added during the early stages of the project, including the Wisconsin Department of Health Services, the Medical College of Wisconsin, the Greater Milwaukee Foundation, the Faye McBeath Foundation, Disability Rights Wisconsin, Rogers Memorial Hospital, the Milwaukee Mental Health Task Force, and several other members of the provider, payer and civic communities.

    Read More

  • BasicNeeds US Launches New Website

    08/2010

    Our friends at BasicNeeds US have launched a new website, and HSRI is proud to have assisted in its development.

    You can visit the site at: http://www.basicneedsus.org

    BasicNeeds US is a non-profit organization serving the health, social, and economic needs of people with mental illnesses and neurological disorders in the world’s poorest communities.

    Read More

  • HSRI is Hiring

    08/2010

    HSRI is seeking motivated individuals for the position of Research Analyst.

    For more information and to submit your resume, please visit our Careers page.

    Read More

  • The Riot! - Issue 25

    07/2010

    Check out the latest issue of the Riot!  This one features an exclusive interview with the new Commissioner of the US Administration on Developmental Disabilities  --  a REAL SCOOP.

    Read More

  • HSRI is Hiring!

    07/2010

    HSRI is seeking motivated individuals for the following two positions: 

    • Data Analysis Systems Development and Support Analyst
    • Project Assistant

    For more information and to submit your resume, please visit our Careers page.

    Read More

  • Report: Ohio’s Title IV-E Waiver Demonstration Project “ProtectOhio”

    05/2010

    HSRI’s Child and Family Services team is excited to post the ProtectOhio Comprehensive Final Evaluation Report, exploring the impact of the Title IV-E Waiver, in 18 participating Ohio counties. Since 1997, these child welfare agencies have used flexible federal funding sources to enhance services and provide family-driven supports, in an effort to reduce their use of foster care. This evaluation report provides an overview of the evaluation of these efforts, with a focus on implementation of programmatic strategies (i.e. family team meetings, supervised visitation, kinship, and mental health and substance abuse services), as well as the impact of Ohio’s Title IV-E Wavier on agency revenue and expenditures, participant outcomes, and case trajectories.

    You can Download the report here: http://www.hsri.org/publication/protect-ohio

    Read More

  • Arkansas Youth United Launches New Website

    05/2010

    We are excited to announced the launch of the new Arkansas Youth United website.  It includes an updated look, new and exciting information about AYU and the work they do, and new features to make the site more accessible.  Check out the calendar for upcoming events including monthly peer support meetings for young people and parents.  Sign up to receive AYU's monthly email newsletter and visit often to see what's new.

    The new website can be found here:  http://www.ayuonline.org

    Read More

  • Reinventing Quality Conference: August 8-10, 2010

    05/2010

    HSRI, along with our colleagues at the University of Minnesota, National Association of State Directors of Developmental Disabilities and the University of Delaware have, for many years, sponsored the Reinventing Quality Conference.  This year’s conference will be held in Baltimore, MD from August 8-10, 2010.  It will feature a range of exciting presentations, and will provide information, new ideas and active discussions about person-centered planning, employment innovations, self-advocacy and more for people with intellectual and developmental disabilities. Please go to www.reinventingquality.org for more information about the program and to register for the conference.

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  • The Riot! Presents the National Conversation on Employment

    05/2010

    The Riot! is hosting a three part national conversation on employment for self-advocates. The first call focused on what self-advocates want to be doing during the day. The second call, June 7th, will be a discussion with field experts about employment opportunities for self-advocates, and alternatives to employment. The last call, July 12, will focus on how self-advocates can get the jobs and experience they want. For more information, visit www.theriotrocks.org .

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  • HSRI Launches New Website!

    05/2010

    HSRI is excited to unveil our redesigned website.  Along with a fresh look and improved navigation, the new site features expanded information about HSRI, our work, and our commitment to improving the lives of people with disabilities.  You can now browse our site by:

    We encourage you to look around and see what has changed. If you have any questions, or would like to provide feedback about the new HSRI.org, please feel free to contact us.

    Read More

  • HSRI is Hiring!

    05/2010

    HSRI is seeking motivated individuals for the following two positions:

    • Data Analysis Systems Development and Support Analyst
    • Project Manager

    For more information and to submit your resume, please visit our Careers page.

    Read More

  • Online HCBS Case Manager Training Now Available

    04/2010

    Our friends at CMS have made two new resources available to connect the work of HCBS waiver case managers to provisions of federal assurances.

    Online Training: An approximately 90-minute tutorial intended for case managers and their supervisors on HCBS waiver basics and federal assurances. The training includes a narrative curriculum, case studies with video vignettes, knowledge checks and reflective exercise to apply general knowledge to specific requirements of individual HCS waivers and states.

    Resource Guide for Trainers: In addition to access by individuals to the online learning module, the Resource Guide supports states and/or case management provider agencies who wish to conduct in-person training programs. The Guide provides instructions, power point slides, tips and other resources to facilitate in-person training. Train-the-Trainer materials are available through the website listed above.

    For more information, please visit: http://www.hcbsassurances.org

    This project was conducted with funds made available through the Centers for Medicare & Medicaid Services under its Money Follow the Person Technical Assistance grant. The Muskie School of Public Service, under contract with the Ascellon Corporation, directs the project. CMS project contacts: Sarah Fogler, sarah.fogler@cms.hhs.gov or Nancy Kirchner, nancy.kirchner@cms.hhs.gov. Muskie project director: Maureen Booth, maureenb@usm.maine.edu.

    Read More

  • Judi Chamberlin

    01/2010

    I want to weigh in on behalf of all of Judi's friends at the Human Services Research Institute. She has served on our Board of Directors for many years and has enriched our conversations with her wisdom and always independent voice. Judi has been a friend and colleague of many of us for more than 30 years. We remember her spirited advocacy for people with mental illness as founder of the Mental Patients Liberation Front, her establishment of the Ruby Rogers Drop In Center (a consumer run center whose first home was in our building), her increasing work internationally with like minded advocates who benefited from Judi's enthusiasm and knowledge, and most of all her energy, indomitable spirit and the love she gave so freely to her family and wide circle of friends. It is hard to imagine our work without her but she touched so many people during her life who are - because of Judi - prepared to carry on what she started.

    Thank you Judi

    Val Bradley
    President
    Human Services Research Institute

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  • NCI Annual Report 2007-2008

    09/2009

    This report provides detailed state system performance data on individual outcomes, including employment, community participation, choice and decision making; health, welfare and rights covering personal safety, self advocacy and use of medications; family outcomes, addressing information and planning, choice and control and access to support; and other dimensions such as staff stability and competency, and system performance.

    Intended to be used in combination with other quality measures such as critical incident reporting, risk assessment and provider monitoring, the NCI indicators are standardized and risk adjusted to permit state to state comparisons and performance benchmarking against national norms. Many states include NCI data as a core component of their CMS mandated waiver program quality management strategy. Currently over thirty state developmental disabilities agencies gather NCI data on a regular basis and the program continues to grow as new states join each year.

    Read More

  • NCI Blog

    09/2009

    “The NCI Blog” is a place where we will share the successes, challenges, and other issues related to the National Core Indicators (NCI). We hope that you the State officials, surveyors/interviewers, self-advocates, family members, and other interested stakeholders will join this discussion by sharing your own NCI experiences. There are no restrictions on content, as long as it’s related to NCI, the language is appropriate (i.e., no cursing), and that absolutely no confidential information is entered. This blog is open to the public.

    www.nciblog.org

    Read More

  • Presentation: Using the SIS to Assess Individual Needs and to Develop Person-Centered Funding Models

    01/2009

    24th National Annual Waiver Conference, Boston October 1, 2008

    Read More

  • News: An article featuring NCI data was recently published in the April 2009 issue of the journal Intellectual and Developmental Disabilities (Volume 47, Number 2).

    05/2009

    Satisfaction and Sense of Well Being Among Medicaid ICF/MR and HCBS Recipients in Six States
    Roger J. Stancliffe, K. Charlie Lakin, Sarah Taub, Giuseppina Chiri, and Soo-yong Byun

    Abstract: Self-reported satisfaction and sense of well-being were assessed in a sample of 1,885 adults with intellectual and developmental disabilities receiving Medicaid Home and Community Based Services (HCBS) and Intermediate Care Facility (ICF/MR) services in 6 states. Questions dealt with such topics as loneliness, feeling afraid at home and in one's neighborhood, feeling happy, feeling that staff are nice and polite, and liking one's home and work/day program. Loneliness was the most widespread problem, and there were also small percentages of people who reported negative views in other areas. Few differences were evident by HCBS and ICF/MR status. The findings document consistent benefits of residential support provided in very small settings-with choices of where and with whom to live-and to individuals living with family.

    http://aaidd.allenpress.com/aamronline/?request=get-current-issue

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  • Val Bradley awarded the Robert M. Gettings Compass Award

    11/2009

    HSRI is proud to announce that Valerie Bradley has been awarded the "Robert M. Gettings Compass Award" by the National Association of State Directors of Developmental Disability Services (NASDDDS). This award is periodically given to recognize the achievements of an individual who, through creativity and a strong commitment to bettering the lives of people with disabilities, has helped to positively shape the course of disability policy in the United States.

    Read More

  • Route to Success

    07/2009

    HSRI has developed a systems change model, along with a set of tools for implementation, that Councils may use to foster systems change work and add value to their existing projects. For more about this model, and for ways that HSRI can assist your Council in using the model across Council efforts, please visit: http://www.hsri.org/project/route-to-success-systems-change/overview

    Read More

  • Presentation: Level Building Models for DD Waiver-SIS Assessment Based Reimbursement

    06/2008

    Using the SIS for Waiver Fiscal Reimbursement

    Read More

  • NASDDDS Litigation Updates

    02/2008

    From the NASDDDS website, http://www.nasddds.org:

    NASDDDS is now posting online litigation articles covered in Community Services Reporter (CSR) and other publications.

    Litigation articles are organized by type of litigation (Access to Services, Community Placement of Institutionalized Persons, Limitations on Home and Community-Based Services, Institutional Reform/CRIPA, Death Penalty Exemption/Determination of MR/DD to be Exempt, and Miscellaneous) and then by state.

    If you know of any new lawsuits concerning developmental disabilities that should be included in NASDDDS publications and this posted update, please send them to Kara LeBeau. (Copies of initial Complaints and other Court documents are especially helpful!) Thank you.

    Read More

  • New Issue of the The Riot!

    02/2008

    Issue 15 on Friendship and Loneliness
    We are proud to present the winter issue of The Riot! In this issue, the theme is Friendship and Loneliness. Take a look! Go to The Riot's home page at www.theriotrocks.org

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  • Illinois Blueprint for System Redesign Released

    02/2008

    Check the ICPDD website: http://www.state.il.us/agency/icd

    HSRI has compiled a comprehensive seven-year "Blueprint" for the Illinois Council on Developmental Disabilities to redesign the state's developmental disabilities service system. HSRI's Gap Analysis reveals that the state is ill positioned to address the needs of its citizens with developmental disabilities. The Blueprint describes 16 Action Steps for needed system re-design. Three primary products are available:

    Gap Analysis: Services and Supports for People with Developmental Disabilities in Illinois. LINK TO PDF FILE The Gap Analysis compares the performance of Illinois services against seven "performance benchmarks." It also compares Illinois' performance with other states.
    Blueprint for System Redesign in Illinois.
    LINK TO PDF FILE The Blueprint describes 16 Action Steps that will help lead to change. These steps place specific focus on the importance of investing in individuals, families and communities.
    Blueprint Executive Summary. LINK TO PDF FILE

    Read More

  • Redesigning Case Management Services for People with Disabilities in Minnesota

    04/2008

    A Report to the Legislature And Minnesota Department of Human Services

    Read More

  • Assessment Instruments and Community Services Rate Determination: Review and Analysis

    04/2008

    The Colorado Division for Developmental Disabilities

    Read More

  • An Appraisal of Washington's Progress in Designing a Standardized Assessment Process and Applying Assessment Results to the Management of Community Developmental Disabilities Services

    04/2008

    N/A

    Read More

  • The Virginia System for Resource Allocation

    04/2008

    Equitably Serving People with Developmental Disabilities on the Comprehensive HCBS Waiver

    Read More

  • Gary Smith Memorial Page updated with Tribute Video

    10/2008

    The Gary Smith Memorial Page - with condolences and stories of Gary from family, friends and colleagues - has been updated to include a Tribute Video. http://www.hsri.org/index.asp?id=gary

    Read More

  • Report: Analysis of Oregon's Drug and Alcohol Treatment and Prevention System

    12/2008

    A report submitted to Oregon's office of the Governor, the Oregon Department of Human Services, and the Oregon Department of Corrections assessing the current status of Oregon's publicly funded alcohol and drug treatment systems.

    Read More

  • Report: National Accreditation of Community Service Providers to Individuals with Intellectual and Developmental Disabilities

    06/2008

    A Survey of 50 States. The Missouri Department of Mental Health, Division of Mental Retardation and Developmental Disabilities engaged HSRI to conduct a survey of the 50 states to determine current state quality management practices pertaining to provider national accreditation.

    Read More

  • NCI 10-Year Report

    11/2007

    This short report describes the evolution of the National Core Indicators over the past 10 years, the accomplishments of the initiative, and challenges and opportunities going forward

    Read More

  • Presentation: Quality of Services and Supports Perspectives from the Individual and Systems Level

    05/2007

    Presented by Valerie Bradley

    Read More

  • Status Report: Litigation Concerning Home and Community Services for People with Disabilities

    05/2007

    This periodic report provides up-to-date information about lawsuits concerning Medicaid community services for people with developmental and other disabilities. A revised report is issued every 4-6 weeks.

    Read More

  • Gary Smith Scholarship for Public Managers Announced

    11/2007

    A Scholarship fund in the name of Gary Smith was created to support young leaders wishing to pursue similar work. Donations will go to students enrolled in a program that trains young leaders in the field.

    If you wish to send a donation, make checks payable to:

    Gary Smith Scholarship for Public Managers, Univ. of DE/ NLCDD

    The checks should be sent to:

    c/o Steven M. Eidelman
    Robert Edelsohn Chair
    Professor, College of Human Services, Education and Public Policy
    University of Delaware
    312 Alison Hall West
    Newark, DE 19716

    Read More

  • NCI's Bimonthly Newsletter: The Indicator

    11/2007

    Volume 1, Issue 4
    We are proud to present The Indicator, the first newsletter for the National Core Indicators (NCI) Program.

    Read More

  • NCI's Bimonthly Newsletter: The Indicator

    04/2006

    Volume 1, Issue 3
    We are proud to launch The Indicator, the first newsletter for the National Core Indicators (NCI) Program.

    Read More

  • The Riot!: A Newsletter for Self-Advocates, Issue 10

    10/2006

    The Riot! is produced by the Self-Advocate Leadership Network at the Human Services Research Institute. We work together with self-advocates to get ideas and write stories. Visit The Riot! webpage here: www.hsri.org/leaders/theriot

    Read More

  • Presentation: Route to Success: What are the keys to creating system change?

    10/2006

    Presented by Sarah Taub at the National Association of Councils on Developmental Disabilities Annual Conference on October 9, 2006.

    Read More

  • Presentation: In Support of People With Developmental Disabilities and Their Families: Working Toward Sustainable Futures

    11/2006

    Presented by John Agosta

    Read More

  • Document: Handling Emergencies: A Guide to Personal Safety and Emergency Managment

    11/2006

    This guide for individuals with disabilities helps people who live in their own homes to prevent emergencies from occurring and to plan in case an emergency does occur. Prepared by HSRI for the State of Oregon, Services to People with Disabilities, the guide addresses six risk areas medications, medical conditions, abuse & neglect, back-up caregiving, home safety and natural disasters and includes an emergency information sheet and other quick-reference lists.

    Read More

  • New Website: Juntos Podemos

    04/2005

    We are pleased to announce the launch of the new Juntos Podemos website - http://hsri.org/juntospodemos/

    The Oregonian
    "Juntos Podemos is the first such family support group in Oregon that focuses on the developmentally delayed."
    Full article can be read here

    Read More

  • Presentation: I Can't get No Satisfaction, Effective Approaches to Obtain Helpful Feedback

    06/2005

    Presented by Valerie Bradley on May 26th, 2005

    Read More

  • Hurricane Katrina: The Disability Relief Fund

    09/2005

    The Disability Relief Fund is now up and running and able to receive tax exempt donations. The Fund is a collaborative effort between the Unitarian Church of Baton Rouge and the Louisana Supported Living Network. We will be distributing $600 stipends to displaced people with developmental disabilities and dsp's to support their relocation and meet current expenses. The displaced people we know need cash NOW and governmental organizations are not making cash available. More Info can be found on our News/Presentations page.

    Please contact national and local organizations as well as individuals who may wish to make donations.

    Please make donations payable to the Unitarian Church of Baton Rouge and note the Disability Relief Fund on the Memo section of your check.

    Send to:
    The Unitarian Church of Baton Rouge
    8470 Goodwood Blvd.
    Baton Rouge, LA 70806

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  • NCI's Bimonthly Newsletter: The Indicator

    10/2005

    Volume 1, Issue 1
    We are proud to launch The Indicator, the first newsletter for the National Core Indicators (NCI) Program.

    Read More

  • Presentation: Working Toward a Sustainable Future, Orange County Regional Center

    02/2004

    Presented by Valerie Bradley on January 31st, 2004

    Read More

  • What Do People Tell Us About the Quality of Their Supports?:

    06/2004

    American Association on Mental Retardation. Presented by Val Bradley and Sarah Taub on June 2, 2004 in Philadelphia, Pennsylvania

    Read More

  • HSRI project receives national Moving Mountains Award at the Reinventing Quality Conference in Philadelphia on August 10th

    09/2004

    The Moving Mountains award is a prestigious national award presented by the National Alliance for Direct Support Professionals and the Research and Training Center on Community Living at The University of Minnesota for excellence in Direct Support Professional Empowerment. Click on the files below to learn more about the award winning PATHS Project.

    Read More

  • Everyday Kids, Everyday Lives

    09/2004

    Everyday Kids, Everyday Lives defines a vision for family and community life. Parents, professionals and policymakers can use Everyday Kids as framework to understand what kids and their families want, need and deserve when advocating for positive changes in the lives of children, their families and their communities.

    2003, Human Services Research Institute and Pennsylvania Developmental Disabilities Council. Permission to reprint, copy and distribute this work is granted provided that it is reproduced as a whole, distributed at no more than the actual cost, and displays this copyright notice. Any other reproduction is strictly prohibited.

    Read More

  • New Website - The HSRI Quality Community

    11/2004

    We are pleased to announce the launch of the new HSRI Quality Community website - www.hsri.org/quality

    Read More

  • Quality Enhancement in Developmental Disabilities: Challenges and Opportunities in a Changing World

    01/2003

    Edited by Valerie J. Bradley, M.A., & Madeleine Kimmich, D.S.W.

    As person-centered services and supports become more prevalent, people with disabilities are enjoying more choices and opportunities - making it challenging to ensure the quality of every service offered. This timely book helps meet that challenge. Diverse contributors, including researchers, care providers, policy-makers, self-advocates, and family members, combine their expertise to help readers

    • understand the changed expectations of people with disabilities and their families and the resulting challenges to quality enhancement
    • clarify the roles of Medicaid and the Centers for Medicare and Medicaid Services
    • address health and safety issues, including investigation of abuse, neglect, and death
    • design databases that track outcomes and target areas for service improvement
    • translate quality information into reliable quality enhancement approaches
    • manage staffing challenges like recruitment, retention, and professional development
    • consider future recommendations and policy directions

    Building on Bradley & Bersanis Quality Assurance for Individuals with Developmental Disabilities, this important resource clarifies the shift toward self-determination and individually tailored supports - and shows professionals in the human services field how to enhance service quality in this rapidly changing world.

    Order Here - Brookes Publishing Co., Inc., PO BOX 10624, Baltimore, Maryland 21285-0624

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  • Presentation: The NADSP Moving Mountains Challenge: Developing a National Workforce Development Agenda

    02/2003

    Presented by Marianne Taylor

    Read More

  • Presentation: Using the "C" Word: ADD Commissioner's Forum -February 20, 2003

    02/2003

    Presented by Marianne Taylor

    Read More

  • Site Reports: Evaluations of person centered practices in 4 leading States

    03/2003

    Including - Wisconsin, Wyoming, Kansas, Connecticut and a Summary

    Read More

  • Paper: Today's Crisis - Tomorrow's Opportunities

    05/2003

    Working Toward a Sustainable Future in Support of People with Developmental Disabilities

    Read More

  • Presentation: Overview of Quality Assurance and Enhancement

    05/2003

    A Framework for Best Practice, presented by Valerie J Bradley

    Read More

  • Presentations: 127th AAMR Meeting, Chicago, IL

    05/2003
    • NCI: A Growing Commitment - Five Years of Performance Measurement, (presented by Valerie J Bradley)
    • Medicaid & Supporting People with Developmental Disabilities - Trends, Challenges and Opportunities, (presented by Gary Smith)
    • HCBS Waiver Program - More dialing for dollars, (presented by Gary Smith)

    Read More

  • Papers: Colorado Systems Change Project

    06/2003
    • An Evaluation of the Colorado Systems Change Project
    • Gauging How Well Colorado Supports Its Citizens with Developmental Disabilities

    Read More

  • New Website: National Core Indicators (NCI)

    08/2003

    We are pleased to announce the launch of the new National Core Indicators (NCI) website - http://www.hsri.org/nci

    Read More

  • New Website:

    09/2003

    We are pleased to announce the launch of the new Child and Family Services website - http://www.hsri.org/childfamilyservices

    Read More

  • Presentation: Evaluation of Ohios Title IV-E Waiver Demonstration Project ProtectOhio

    09/2003

    Summary of Findings from the 5-year study, September 2003

    Read More

  • Presentation: AAMR, Founded in the 19th Century, Meeting 21st Century Challenges

    10/2003

    Presented by Valerie Bradley

    Read More

  • Presentation: Quality Assurance, It's Everybody's Business

    10/2003

    Presented by Valerie Bradley

    Read More

  • New Website

    08/2003

    We are pleased to announce the launch of the new National Core Indicators (NCI) website

    Read More

  • Equal Rights for People with Cognitive Impairments: The International Impact of Nordic Welfare Policy

    04/2002

    Presentation given by Valerie J Bradley

    Read More

  • The Road Not Taken: Paths to Careers in Human Services

    05/2002

    Presented by Marianne Taylor at the Innovation Out of Crisis held in Boston on April 25, 2002

    Read More

  • Using State-Level Performance Data: an Update on the National CIP

    06/2002

    Presented by Valerie Bradley at AAMR

    Read More

  • Technical Assistance: National Contractor for Quality in HCBS

    09/2002

    The Centers for Medicare and Medicaid Services (CMS) has contracted with Human Services Research Institute (HSRI) through the MEDSTAT Group to provide technical assistance aimed at enhancing quality assurance and improvement efforts to states on behalf of people with developmental disabilities in home and community-based waiver services.

    Read More

  • Presentation: Analysis of States Licensing/Certification Outcomes Processes

    10/2002

    June Rowe presents on 5 State's licensing processes

    Read More

  • Papers: Managed Care and Vulnerable Populations: Adults with Serious Mental Illness

    10/2002

    Core Paper 1: Sample Survey Component

    Core Paper 2: Claims and Encounter Component

    Read More

  • Presentation: Using Flexible Funds to Improve Child Welfare - Evaluation of Ohios Title IV-E Waiver Demonstration Project

    11/2002

    This presentation was given in September 2002 by Madeleine Kimmich at the Public Children's Services Association of Ohio annual conference

    Read More