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  • NCI Data Brief on Psychotropic Medication

    12/2012

    The latest Data Brief from the National Core Indicators Project has been published on NCI’s website. The Data Brief is entitled "What does NCI tell us about adults with intellectual and developmental disabilities who are taking prescribed medications for anxiety, behavior challenges, mood disorders or psychotic disorders?". The subject of the Brief is a descriptive analysis of adults with ID/DD who take medications for the four conditions described in the title. Data on utilization of these medications and co-occurring diagnoses are presented. In addition, data on outcomes are compared between people who take one of these medications and people who do not. Some of the notable findings include a high percentage of people who take medications without a recorded diagnosis, as well as the link between taking medications and being overweight or obese. The NCI team plans to continue these analyses and publish the results in a peer-reviewed journal.

    The data brief can be downloaded from NCI's website for reading (PDF, 367kb).

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  • HSRI Evaluation Supported the Inclusion of the Six Core Strategies to Prevent Conflict and Violence

    12/2012

    The intervention Six Core Strategies to Prevent Conflict and Violence: Reducing the Use of Seclusion and Restraint (Six Core Strategies) was added to the Substance Abuse and Mental Health Services Administration (SAMHSA) National Registry of Evidence-based Programs and Practices (NREPP) in November 2012. The Six Core Strategies is a model designed for use for by institutions providing mental health treatment to children and adults admitted to inpatient or residential settings. The Six Core Strategies was developed by the National Association of State Mental Health Program Directors (NASMHPD), National Technical Assistance Center. In 2004, SAMHSA funded the first round of grantees of Alternatives to Restraint and Seclusion (ARS) State Incentive Grants (SIG) to identify effective practices to reduce and ultimately eliminate the use of seclusion and restraint. HSRI conducted the evaluation of the first round of ARS SIG grantees which included the development of a fidelity measure to assess implementation of alternatives to seclusion and restraint. Findings from the evaluation were used to support outcomes of the Six Core Strategies. The NREPP review for the Six Core Strategies can be found at the following link: http://www.nrepp.samhsa.gov/ViewIntervention.aspx?id=278.

    More information about the evaluation can be obtained from Terry Camacho-Gonsalves at tcamacho@hsri.org

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  • HSRI Senior Vice President Stephen Leff presents at the WHO's Symposium on Quality Improvement

    11/2012

    HSRI Senior Vice President Stephen Leff led a workshop and made a plenary presentation at the World Health Organization's Symposium on Quality Improvement in Suwon, South Korea.

    The subject of both the workshop and the plenary presentation was the role of planning in providing targets for the quality improvement process.

    A copy of his presentation can be downloaded for viewing here (PPT, 3 MB).

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  • HSRI Newsletter for November 2012

    11/2012

    HSRI is pleased to announce the publishing of the November issue of its newsletter. Topics covered included Vice President David Hughes speaking in a webinar series on health insurance outreach, eligibility and enrollment, the release of the National Core Indicators 2010-11 Annual Summary Report, and  the Illinois Council on Developmental Disabilities releasing HSRI's report on System Redesign.

    A copy of the newsletter may be read here. If you would like to sign up to recieve these newsletter updates via email, please enter your information in this form.

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  • 2010-11 National Core Indicators Annual Report Released

    10/2012

    HSRI and NASDDDS are pleased to announce the release of the National Core Indicators 2010-11 Annual Summary Report. The Annual Summary Report highlights selected aggregate results from several of the NCI data sources. For 2010-11, particular attention was paid to the Family Surveys data.

    The report is avaiable on the NCI website: http://www.nationalcoreindicators.org/resources/reports/

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  • NCI Publishes User-Friendly Version of the Consumer Outcomes Report

    10/2012

    NCI is excited to introduce a new User-Friendly version of the Consumer Outcomes Report. The Report uses plain language and pictures to describe select items from the Consumer Outcomes Report. We owe a great thanks to California’s Consumer Advisory Committee (CAC) who were instrumental in helping develop this new way of presenting NCI data.

    The inaugural “What We Have Learned from the NCI Adult Consumer Survey” shows 2010-11 National NCI data. In future years, along with the national report, each state will receive its own report showing the state’s specific data. The User-Friendly Reports will be released with the national data and located on the NCI website under the User-Friendly Reports section of the Reports Page.

    Thanks again to the CAC! We look forward to getting your feedback.

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  • HSRI President Valerie Bradley speaks at the National Disability Authority conference in Dublin

    09/2012

    The People with Disabilities Participating Fully and Safely in the Community Conference, held in Dublin, Ireland by the National Disability Authority invited HSRI President Valerie Bradley to speak on using National Core Indicators data to Manage  Public Systems. Below is a video recording of her presentation:

    Recording of other presentations may be found here.

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  • Follow National Core Indicators on social media!

    09/2012

    We're proud to announce that National Core Indicators presence on Facebook and Twitter! Follow them to receive news and updates about the program, as well as links to relevant developmental disabilities issues.

    Facebook IconNational Core Indicators on Facebook

    Twitter IconNational Core Indicators on Twitter (@coreindicators)

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  • Reinventing Quality Conference PowerPoint Presentations

    08/2012

    PowerPoint presentions used during the 2012 Reinventing Quality Conference are available for download in PDF format on Reinventing Quality's website:
    http://www.reinventingquality.org/upcoming/schedule12.asp

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  • The Riot! - Issue 33

    07/2012

    The Riot! Issue 32's coverWelcome to our Voting Rocks! Issue. Self-advocates are all about speaking up for themselves and others. One way to have your voice heard is to vote. This issue is about helping you get ready to vote. Inside you will find information about new voting technology, personal stories about voting, and tools to help you decide who you want to vote for.

    Download Issue 32

    You can visit The Riot! website here: www.theriotrocks.org

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  • Working Toward A Sustainable Future for Developmental Disability Service Systems

    06/2012

    AAIDD recently convened its annual meeting in Charlotte, North Carolina. At this conference John Agosta and Jon Fortune gave a presentation entitled “Working Toward A Sustainable Future for Developmental Disability Service Systems.” The PowerPoint presentation that was given may be viewed and downloaded here (PDF, 6.2mb). In addition a description of the presentation is as follows:

    Demand is steadily increasing for developmental disability services. Meanwhile, states are having trouble finding the funding for additional services, and stuck with outdated service arrays that people increasingly don’t want. In response, states are looking for ways to make their service systems more efficient and equitable while promoting outcomes tied to community integration and self-direction. What can be done? This presentation offers discussion on these circumstances, and describes means for using the Supports Intensity Scale for allocating individualized budget allocations as well as a promising approach to address support needs. This approach blends together three resources, including services offered by public agencies, supports that people with disabilities, their families and others may offer to one another, and supports offered by businesses and community serving organizations. By considering these and other responses, service systems can become fairer, more efficient and increasingly sustainable–all while promoting valued outcomes for people with developmental disabilities.

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  • NASDDDS and HSRI Present at AAIDD Annual Meeting

    06/2012

    The American Association on Intellectual and Developmental Disabililties held its 136th Annual Meeting this week in Charlotte, North Carolina. NASDDDS and HSRI staff were there presenting on NCI data, specifically on the following topics: employment, psychtropic medications, and obesity. You can download the PowerPoints by visiting the Presentations page on NCI's website, or directly download a copy from the two links below:

    Psychotropic Medication Use and Obesity Among IDD Service Recipients in 15 States (PPT, 340kb)

    What Working in the Community Means: Employment and Outcomes for Adults with Intellectual and Developmental Disabilities from Across the United States (PPT, 1.5mb)

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  • Remembering Hank Bersani

    06/2012

    Almost everyone here could stand up and talk about the extraordinary career and contributions of our dear friend and colleague – the irrepressible, passionate, and gifted Hank Bersani. It falls to me to represent all of you and pay homage to our absent friend and to try and capture his spirit in some personal recollections.

    Hank – or the Hankster as I liked to call him – had deep roots in our field and was mentored by some of the previous generation’s giants including Burton Blatt, Wolf Wofensberger, and Gunnar Dybwad – all of whom, like Hank had a connection to Syracuse University where Hank got his Ph.D. He took something from each one of them and combined their wisdom into his own critical vision of the field of intellectual and developmental disabilities.

    That vision – and the energy with which he pursued it – made him an extremely popular presenter around the country – particularly as a regular at Partners in Policymaking events. He was a wonderful speaker and quickly engage his audience. What most audiences didn’t know was that he got serious stage fright before such events but once launched on his message, the fright quickly subsided. I often thought that Hank was an introvert trapped in an extravert's body.

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  • Illinois at the Tipping Point: Blueprint for System Redesign Update Released

    06/2012

    Illinois is at a tipping point. Policy makers are committed to moving the service system for people with intellectual and other developmental disabilities (I/DD) forward to achieve financial sustainability and deliver high quality person-centered supports, while also serving additional citizens waiting for services. 

    In 2007, the Illinois Council on Developmental Disabilities awarded a grant to the HSRI to review the state’s system for delivering services to people with intellectual and other developmental disabilities (I/DD). Two primary reports resulted: (a) a gap analysis assessing 2007 performance, and (b) a Blueprint for System Redesign providing action steps for closing any noted gaps.

    In 2011, the Illinois Council on Developmental Disabilities asked HSRI to refresh the findings originally described in the Gap Analysis project conducted in 2007, review the progress made in Illinois since 2008 to implement the Action Steps recommended by the  original Blueprint, and offer additional recommendations as warranted. This report presents a strategic assessment of the Illinois service system for people with I/DD, from 2008 to the present.

    The report can be downloaded here.

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  • HSRI is hiring: Senior Research Analyst (DD)

    05/2012

    HSRI is seeking a motivated Senior Research Analyst for its Oregon office. For more information and to submit your resume, please visit our Careers page.

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  • National Core Indicators' Data Implementation Guide Published

    05/2012

    This handbook was created to enhance the use and application of information generated through the collection of data a part of National Core Indicators (NCI). The audience for this guide includes managers of public intellectual and developmental disabilities (ID/DD) systems, providers of services, board members, people with disabilities and their family members, and other interested advocates.

    The guide may be viewed either on the web or downloaded as a PDF file here:
    http://www.nationalcoreindicators.org/resources/guides/

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  • Global Accessibility Awareness Day 2012

    05/2012

    Global Accessibility Awareness Day is a community-driven effort whose goal is to dedicate one day to raising the profile of and introducing the topic of digital (web, software, mobile app/device etc.) accessibility and people with different disabilities to the broadest audience possible. The event also promotes trying to operate a computer for an hour without a mouse using only assistive tools such as a Screen Reader, in order to get a better understanding of how users with disabilities interact with technology on a regular basis.

    http://www.mysqltalk.com/gaad.html

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  • Protecting Children Journal on Differential Response is Published

    05/2012

    An experimental research design is often touted as the gold standard for establishing cause and effect; nonetheless, implementing this type of methodology in a socially complex environment can pose difficulties that might otherwise be underestimated. This article chronicles the successes, challenges, and methods used to overcome challenges experienced by researchers in a randomized control trial evaluating the impact of Differential Response in Ohio; Differential Response is a child welfare intervention approach used with families reported for child abuse and neglect.

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  • HSRI is hiring: Senior Research Analyst (DD)

    05/2012

    HSRI is seeking a motivated Senior Research Analyst for its Oregon office. For more information and to submit your resume, please visit our Careers page.

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  • Community Inclusion Survey

    05/2012

    HSRI is currently conducting an online national survey about the costs of programs focused on the community inclusion of individuals with psychiatric diagnoses for the Temple University Collaborative on Community Inclusion for Individuals with Psychiatric Disabilities. We hope to learn more about the costs associated with these programs to inform technical assistance efforts for organizations implementing or planning to implement these types of programs.

    If you or your organization may be interested in participating in this survey, or if you would like additional information, please contact Ben Cichocki at 617-844-2500 x2502 or bcichocki@hsri.org.

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  • HSRI Presentations at IASSID World Congress and AAIDD Annual Meeting

    04/2012

    HSRI staff will be presenting several papers at the upcoming AAIDD Annual Meeting in Charlotte, North Carolina in June and the IASSID World Congress in Halifax, Nova Scotia in July. Presentation topics at the AAIDD meeting will focus on NCI results, including community employment, family outcomes, and data related to the use of psychotropic medications, but also on HSRI’s work pertaining to building individualized budgets based on a measure of individual support needs. Likewise in Halifax, the NCI program will be the focus of a plenary session entitled “National Core Indicators: Outcomes and Services for Adults with Intellectual Disabilities,” presented jointly by Roger Stancliffe from the University of Sydney and Sarah Taub from HSRI. HSRI and our partners at NASDDDS are excited about the opportunity to share NCI findings with an international network of colleagues. In addition, HSRI staff will also be presenting on work related to self-advocacy, systems change and establishing individualized budgets.

    More information about the conferences is available here:
    http://www.aaidd.org/content_6546.cfm
    https://iassid.org/conference/index.php/HPC/2012IWC

    Plenary information is available here:
    https://iassid.org/conference/index.php/HPC/index/pages/view/Plenary

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  • The Riot! - Issue 32

    04/2012

    The Riot! Issue 32's coverWelcome to our We Are Family issue. Siblings can be our best friends and our biggest rivals. They make life both wonderful and challenging. In this issue, we celebrate siblings with stories, ideas and information about what it is like to be in a family of children with and without disabilities.

    Download Issue 32

    You can visit The Riot! website here:  www.theriotrocks.org

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  • Reminder: Reinventing Quality Conference: August 8-10, 2012

    04/2012

    Reinventing Quality 2012 Conference Logo

    HSRI, along with our colleagues at the University of Minnesota, National Association of State Directors of Developmental Disabilities and the University of Delaware have, for many years, sponsored the Reinventing Quality Conference. This year’s conference will be held in Baltimore, MD from August 8-10, 2012. It will feature a range of exciting presentations, and will provide information, new ideas and active discussions about person-centered planning, employment innovations, self-advocacy and more for people with intellectual and developmental disabilities. 

    Both the 2008 and 2010 Reinventing Quality conferences attracted over 700 disability professionals, people with disabilities, family members, advocates, and state and federal officials. The goal of the Reinventing Quality Conference is to provide information, new ideas and active discussion about the point of view of people with disabilities and their families -- and the systems and supports needed to improve the quality of life and citizenship for people with disabilities.

    Please go to www.reinventingquality.org for more information about the program and to register for the conference.

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  • In Memory of Dr. Henry “Hank” Bersani

    04/2012

    Dr. Henry "Hank" Bersani

    On March 31st, 2012, Hank Bersani, a dear friend and colleague to us at HSRI, passed away following a bicycle accident in Monmouth, Oregon. He was 61.

    Hank was a respected leader in the field of developmental disabilities, especially in matters pertaining to special education, research and policy.  More particularly, he provided direction many of us with sage advice on how to provide to provide supports that ensure that people with developmental disabilities live real lives of their choosing in the community.  He was relentless in a relentless advocate and no one fought harder for the rights of people with disabilities.

    Hank held positions at Syracuse University, Oregon Health & Sciences University, and Western Oregon University.  He also served as a Joseph P. Kennedy Jr. Public Policy Fellow, a Mary Switzer Distinguished Research Fellow with the National Institute on Disability and Rehabilitation Research, and was assigned to U.S. Senator John H. Chaffee’s office.  He was the recipient of many distinguished awards, including the Mario and Alma Pastega Scholarship Award, the Multnomah County Arc Educator of the Year Award, the Rosemary F. Dybwad International Travel Fellowship Award, and the Franklin Smith National Service Award of the Arc of the US.

    Hank’s work afforded many opportunities for collaboration with HSRI.  Several of us fondly remember working with Hank on initiatives across the United States and internationally.  In fact, for a time, Hank shared space with HSRI staff in our Oregon offices.  In addition, his wife, Lynda, was employed previously at HSRI.

    Aside from the wide span of his achievements and awards, we remember Hank as a caring teammate, an excellent story teller, a terrific father and husband, and above all as the whirlwind bright light that lit up any room he entered.  He touched all our lives.

    Dr. Bersani is survived by his wife, Lynda, of Monmouth, his son and daughter, Lisa and Alex, of Portland, his sister, Mary Beth, and his parents, Henry and Mathilda Bersani.

    Hank, dear friend, we miss you already.

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  • Sprout Film Festival

    04/2012

    HSRI is collaborating with Inclusion, Inc. in Portland, Oregon to host a local Sprout Film Festival on May 12.  The festival is being held to raise funds for The Riot and Inclusion, Inc. and will feature entertaining and memorable films related to people with developmental disabilities. The festival includes film showings, an auction and reception.  If you are in the Portland area we hope you will attend!  For more information go to: http://www.theriotrocks.org/products/sprout-2012

     

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  • HSRI is hiring!

    03/2012

    HSRI is seeking a motivated Senior Research Analyst for its Oregon office. For more information and to submit your resume, please visit our Careers page.

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  • Administration on Developmental Disabilities Awards Funding for NCI Expansion

    01/2012

    The Administration on Developmental Disabilities (ADD) has awarded NASDDDS $1.5 million dollars over five years in order to expand and improve NCI. Below is a press release from ADD:

    The U.S. Department of Health and Human Services (DHHS), Administration for Children and Families (ACF), Administration on Developmental Disabilities (ADD) has awarded a five year contract totaling $1.5 million to the National Association of State Directors of Developmental Disabilities Services (NASDDDS), of Alexandria, VA to increase their efforts with the National Core Indicators (NCI) Project.

    "We are very excited about supporting the qualitative approach to understanding the DD service system that the National Core Indicators offers, and helping NASDDDS expand this effort to more States. The NCI data is a useful tool for service systems, researchers, policymakers, families and individuals with developmental disabilities, and will be a great addition to the longitudinal data projects that ADD funds."

    In all, 11 states applied to receive funding to join in NCI in the first year of this contract. We are pleased to announce the five states who were accepted to receive this funding to support their ability to measure and track service outcomes and performance during this first year: Virginia, Maryland, South Carolina, Michigan, and Connecticut. Another five states will be selected over the next few months for year two. For more information, please contact Josh Engler at jengler@hsri.org.

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  • The North Carolina Technical Assistance Collaborative Releases Reports

    03/2012

    In 2008, the North Carolina Council on Developmental Disabilities (NCCDD) convened a summit of developmental disabilities stakeholders to discuss areas of system change. To assist state officials with implementation of Summit recommendations, the NCCDD engaged Human Services Research Institute (HSRI) and other topic experts to provide technical assistance.

    The following two reports are part of this effort.

    A Strategic Analysis for Change: Action Steps - For Responding to the Needs of People with Developmental Disabilities in North Carolina

    A Strategic Analysis for Change: Planning Context - Responding to the Needs of People with Intellectual and Other Developmental Disabilities in North Carolina

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  • Reinventing Quality Conference: August 8-10, 2012

    03/2012

    Reinventing Quality 2012 Conference Logo

    HSRI, along with our colleagues at the University of Minnesota, National Association of State Directors of Developmental Disabilities and the University of Delaware have, for many years, sponsored the Reinventing Quality Conference. This year’s conference will be held in Baltimore, MD from August 8-10, 2012. It will feature a range of exciting presentations, and will provide information, new ideas and active discussions about person-centered planning, employment innovations, self-advocacy and more for people with intellectual and developmental disabilities. 

    Both the 2008 and 2010 Reinventing Quality conferences attracted over 700 disability professionals, people with disabilities, family members, advocates, and state and federal officials. The goal of the Reinventing Quality Conference is to provide information, new ideas and active discussion about the point of view of people with disabilities and their families -- and the systems and supports needed to improve the quality of life and citizenship for people with disabilities.

    Please go to www.reinventingquality.org for more information about the program and to register for the conference.

    Read More

  • The Riot! - Issue 31

    01/2012

    Self-advocates, don’t let the same old crap get you down.

     

    We are stronger together! This issue of The Riot! Is about the work we need to do in 2012. With a tough economy and more cuts to services happening, let’s make sure states make better choices and fund programs that support people to have real jobs and a real life.

     

    Download File

     

    You can visit The Riot! website here:  www.theriotrocks.org

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  • Jon Fortune, Ed.D. recognized as a FAAIDD Fellow

    03/2012

    HSRI is pleased to announce that Jon Fortune, Ed.D. is being recognized as a Fellow of the American Association on Intellectual and Developmental Disabilities (FAAIDD).  This distinction is presented to him in recognition of his considerable contributions to the field of disability and for his service to the Association.

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  • National Core Indicators (NCI) Launches New Website

    02/2012

    HSRI 35th logoHSRI and NASDDDS are pleased to announce that the new and improved National Core Indicators (NCI) website is now live!  Along with a fresh look and expanded information about NCI and participating states, the new site includes an enhanced chart generator.  This feature allows users to create customized charts of NCI data using filters such as state, type of residence, year, and many others. Users can also easily access documents such as the NCI member states' most recent state reports.

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