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NASUAD & HSRI Release NCI-AD Report and Launch New Website

06/2016

HSRI and the National Association of States United for Aging and Disabilities recently released the results from the first deployment of the National Core Indicators – Aging and Disabilities adult consumer survey, an important new tool for the aging and physical disabilities field. NCI-AD™ survey data is collected through in-person interviews with older adults and adults with physical disabilities accessing publicly funded services. The project’s primary aim is to provide valid and reliable data to give states a broad view of how their publicly funded long-term services and supports impact the quality of life and outcomes of service participants. Importantly, it helps address long-recognized gaps in assessing outcomes that go beyond health and safety to include important social, community, and person-centered goals.  Some examples include having transportation to go into the community, having privacy, feeling in control of one’s life, being able to see or have contact with friends and family, desiring employment, being able to choose what services are received and at what frequency, and who provides those services.

While 13 states are participating in the NCI-AD survey in 2016, six of the states – Colorado, Georgia, Maine, Mississippi, New Jersey, and North Carolina – opted for a rapid-cycle survey period in order to receive their results more quickly. A report with data from all 13 states – including Delaware, Indiana, Kansas, Minnesota, Ohio, Tennessee, and Texas – will be released in winter 2017.

Data for the project are gathered through yearly in-person consumer surveys administered by state agencies to a sample of at least 400 individuals, which includes older adults and adults with physical disabilities – including those with acquired or traumatic brain injury – accessing publicly funded services through Medicaid (both HCBS waiver and state plan services as well as nursing facilities), state-funded programs, and Older Americans Act programs. The survey measures consumer outcomes in the following domains: community participation, rights and respect, choice and decision making, health care, relationships, medications, satisfaction, safety and wellness, service and care coordination, everyday living and affordability, access, planning for the future, self-direction of care, control, and work/employment.

“Our members have been searching for a tool like this for a long time,” said Martha Roherty, NASUAD Executive Director. “We commend them for taking the initiative to measure and improve the quality of life of seniors and adults with physical disabilities they serve across their LTSS system.”

View the full report here.

HSRI and NASUAD also launched a new website dedicated to the NCI-AD project. NCI-AD.org is a repository of information, reports and data about the NCI-AD project, and includes profiles of each participating state, overview materials and published reports. State data will be published on the site as well.

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